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chromezone disorders

(3 Posts)
ettevy80 Tue 25-Oct-11 15:50:02

my child has been diagnosed with a rare genetic disorder called ring 21 disorder i am desperate to find someone who knows about this or has a child with the same.

chipmonkey Tue 25-Oct-11 16:23:25

Ette, you may be better posting this in Childrens Health or Special Needs. Sorry you're going through this.sad
My cousin has a little boy with a rare disorder and I think there is a website for parents of children with rare disorders. I will ask her on FB but it may be some time before I get back to you.

chipmonkey Tue 25-Oct-11 16:38:16

Ette, my cousin linked to this organisation

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