Recent diagnosis

(6 Posts)
Outnumb3red Mon 15-Oct-18 20:01:52

My DMs partner has just been diagnosed with early onset Alzheimer's and vascular dementia, he's only in his late 50's.

I just feel so heartbroken and angry. I will be there to help my mum as much as I can, but I really don't know how it's going to be.

They have POAs in place already- thankfully

OP’s posts: |
chrissie28 Mon 15-Oct-18 23:05:37

That's very young and you will all be grieving at this time. Good that you have the basics in place. A good step forward would be to phone age uk 0800 055 6112 when you are ready because they have volunteers who will come and help with forms like the PIP forms (as he is still of working age) and the council tax reductions. They support through all the financial things that need to be in place and as usual all the forms are tricky and even trickier when you are in shock.

Noone knows how it is going to be and the best thing to do is to take one day at a time and make as many memories as you can. I run a separate support group on facebook for dementia - please join us if you would like to www.facebook.com/groups/dementiaconnection/

PurpleWithRed Mon 15-Oct-18 23:07:49

When the time is right, he might want to consider writing an Advance Decision: it will remove a lot of decisionmaking burden from your DM when he loses capacity. But that's one to take very tactfully indeed.

Outnumb3red Tue 16-Oct-18 22:25:27

He's not taking it in at the moment, and other times he forgets that he has this diagnosis.

He said to my mum, so when you leaving 💔😢, you don't need to be stuck with me.

I just want to cry every time I think of him

OP’s posts: |
chrissie28 Wed 17-Oct-18 14:31:00

That is really sad - so hard for all of you xxx

crosstalk Wed 24-Oct-18 20:20:40

All sympathies to all of you. Poor, poor man - especially if he thinks your mum will leave him. Definitely be pro-active and get him to do a health and financial power of attorney, advance decision and will. Contact Dementia UK. Does he have family?

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