My dad has Alzheimer. He has been diagnosed for 3 years and I guess at the moderate stage. He is mostly ok in the dad - he has 2 carers come in each day - one for lunch and one at dinner time. He does ok in the day with my help and the carers.
BUT at night he is a nightmare - he just dose not sleep. He is up between 7 and 20 times a night. We have tried various drugs all to no effect. When he gets up he is determined to leave the house.
Initially when we became aware of the nighttime wandering in July/August (via the police picking him up in the middle of the night) I stayed at his house. We asked Social services for help but they refused night time care. I at the point of a breakdown due to lack of sleep decided we had to employer a carer. SS just said he needs 27/7 care.
My husband and I are paying for this ourselves. The carer does 5 nights (with me the other 2) and it costs £325 a week - our saving are dwindling fast.
I have looked at care homes but just dont feel he is ready them as he is so good in the day. I have put his name down for 2 homes. The only 2 that met my basic criteria of access to a reasonable amount of outdoor space and ensuite.
Anyway a bed has come up in the more expensive of the 2 homes. The home has said my dad can go for respite/trial. My husband is really keen on my dad trying it as he says we are just 'firefighting' at the moment and soon we will be at crisis point again.
BUT social services say the £760 a week this home costs is too expensive, if my dad was to stay permanently (I cant really see the point of respite unless it is likely to be home he would ultimately go to - I dont want to confuse dad further) . I reckon if I sold his house he has enough money for 3 years. The social worker was horrified "But he is only 77, he could live until he is 90, you cant possibly even consider X. it is inappropriate"
That has left me overwhelmed - what do I do keep him at home - costing me £1200 a month put him in carehome and his money will run out in 3 years. Alternatively I wait an see if the other care home bed comes up - but he is not the first on the list and it could be months and months - waiting for some one to die. Or as the SW wants me to I re look at the homes I have vetoed already or I look geographically further afield. My dad has too much awareness in the day to put him the EMI typle places, he needs residential.
Feel stuck between a rock and a hard place. And skint!!
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Dementia and Alzheimer's
Don't know what to do- help please
4 replies
dinodino27 · 11/11/2014 21:10
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