T1 Diabetic, TTC #1, 39, high prolactin levels.... what are my odds?! :/

[sabtom]

Hellooo! so this is my first time posting, so just looking for support and advice I guess . Anyone in the same position as me?

I had progesterone tests done twice, first result was 13nmol/L and 2nd was 27nmol/L, so I think it shows I'm ovulating? However, my period came a couple of days earlier than expected, so the day I got the bloods done might not have been on the correct day. The OPK's show a second line but sometimes they're not as dark as they should be. My periods are regular but are shorter than they used to be (when I was younger and before the pill) usually between 24-27 days. My luteal phase seem to be about 11/12 days I think.

The one thing that does worry me is my prolactin levels. Again had 2 done, first was 623 mIU/L then 1 month later raised to 903 mIU/L. The only thing my doctor has suggested is keep trying and come back in 2 months to check bloods again! This is worrying as I turn 40 in 4 months and I was told the day I turn 40 we get no help from the NHS after that and he said there might be chance I won't even get referred!
What can I do to help things along? I'm already on 5mg of folic acid (cause of my diabetes) vitamin D & Iron (cause I'm low). Would taking Pregnicare tablets be pointless or anything else?

I've also had the transvaginal US and everything showed as normal/good - follicles seen in both ovaries.

Oh and my partner is currently waiting for his test results with regards to his little swimmers

Phew! Thanks for reading

[sabtom]

Anyone?

[Veryveryverylate]

Extra vitamins can't hurt, unless they make you feel unwell. What is your hba1c like? I don't know about the rest but I'm a fellow type 1, ttc dc3.

[sabtom]

Hi @Veryveryverylate

My last Hbc1 was 44mmol (6.2%) I was given the green light by my Diabetes team to start TTC about a year ago - I think back then I managed to get it as low as 39 mmol! And since then I've always had quite good control. We were planning to start TTC just before I got diagnosed with T1 (in Feb 2018), so until I got my levels back under control we had to hold off TTC.

[Rosieposy89]

Can't they offer you medication to treat your increased prolactin? Good luck x

[Veryveryverylate]

Woow 39mmol! That is determination. My one has been around 46 to 49 mmol. I got a Libre in July and I hope I can bring it down some further without extra hypos. The preconception clinic might be able to help with getting a referral. A doctor there in February told me she can write a letter to my gp requesting a referral to fertility clinic. At the time, I said no. The offer took me by suprise and that is when I got 49 mmol and I thought it won't take long! It got high that month as I got a bit ill which sent my sugar crazy high.

Sorry diabetes came at a bad time increasing a challenging time. I have had it more than a decade so it hasn't really changed much for me.

[sabtom]

@Rosieposy89 That's what I was hoping for but instead, I was just told to get repeat bloods done in a couple of months! How high do my levels need to go before they start doing something about them?!

@Veryveryverylate Yeah the Libre is great! I've been on it now for about a year, I'm lucky enough to get in on prescription too. In trying to get my levels down for conception I was trying real hard and having a lot of hypos, opps lol. I will be seeing my DNS in a couple of days so I will mention to her about getting a referral. I think with the high prolactin level I'll probably be seeing my endocrinologist sooner than expected too.

[agteacht]

Hi @sabtom I would definitely recommend trying to get some medication for your prolactin levels.

Mine measured 1400-1700 and only 4 weeks on cabergoline brought it down to around 100. And I got pregnant immediately. I had been trying for ages and had historically had high levels so should have got it checked sooner.

It could make a real difference!

[sabtom]

Thanks for your reply @agteacht I've made an appointment to speak to another Dr in a couple of days because I wasn't happy about just waiting another 2 months to do the prolactin tests again. For my levels to nearly double in the space of 4 weeks, I dread to think what they could be in 8 weeks! However, from my medical records, I see that a referral letter was sent yesterday to a fertility clinic so fingers crossed I get an appointment ASAP.