Hi Happy J.
Sorry to hear of your sisters news. Its really hard to come to terms with, and feels like a kick in the teeth. Not only do you have to deal with a losing a baby, but then have the shock of molar too.
I am currently having monitoring at Sheffield following the diagnosis or a a partial molar pregnancy in December, after what was thought to be a mmc at 11 weeks.
Everbody is different, but I hope this will help.
the monitoring is done remotely, so she will first have a blood test at the local hospital, which will be sent to Sheffield. then, after a few weeks she will recieve thriugh the post some instructions and a little tube to wee in. this is sent back to sheffield the following day, and they test it for the hcg. If the hcg is normal - ie - negative within a few weeks following the erpc, then she will do this tes weekly. This will contiinue for about 3 months, then have another blood test at the local hospital. After thet, the monitoring will continue for a few more months, but now fortnightly, until she is classed as beling clear from trophablastic disese aafore approx 6 months from the date of the 1st clear test.
If it takes longer to get a first clear result, thenit will be longer until she is discharged from the folow up monitoring.
if the hcg does not drop to normal , then a second erpc may be needed. if the hcg suggesrs that the tumour is active, then she may need drug treatment to get rid ofit, which is administered at sheffield, and is a type of chemotherapy. It is probaly only if this is needed that she wil actually go to Sheffield.
Needing chemo is rare following a partial molar prenancy, more common for a complete mole. There is every chance that she will go on to have a healthy, normal pregnancy afterwards. She will not be allowed to ttc though until the follow up is finished, as a new pregnancy will mask or mimic any symptoms of the molar pregnancy becomimg active again. Follow up is generally a minimum of 6 months sometimes longer.
It is a worrying time, but theer is support on here in the form of TTC after miscarriage, and to reassure your sister, Sheffield told me ther is a 95% chance that I I'll never need to actually go to Sheffield.
There is also a lovey lady here called Mistlethrush who has experience of molar prenancy with chemo.
I've not yet been discharged from Sheffield, so my experience is very recent, if you sister wants to contact me at all. There is also a support nurse based at Sheffield, called Jan Everard, who is excellent.
Your sister will recieve an information pack in the post shortly, explaining everything that will happen.
I hope this helps