Is anyone else in same boat: PCO syndrome?

[warmapplecrumble]

Hi, I am new.

When I was 13 years old I was diagnosed with PCO with blood tests, doctor said the hormone connecting testosterone and estrogen was deficient in me. Something like that. I did have few irregular periods and had soft hair on my body, when I started but I was put on the pill very early. I was told I was infertile and would never have children.

Fast forward my GP took me off the contraceptives and metformin at 20.

I am now 25, I have had regular periods, 28 day cycle, 2 day heavy bleeding, 3 day very light. I have very little cramps. No acne. And I am pretty sure I ovulate.
My breasts are double d - I read you usually have small breasts with PCO
I put most my weight on my hips.
I get odd hairs on chin and near side burn, mostly just ingrown hairs on my legs but that's about it. It's always been soft fluffy hair.
My weight is average, I could loose a little.
I put my weight on when I got raped that resulted in pregnancy. The pregnancy never went through as I had car accident.

Now with all the information above I have no idea, if I have PCO or not? And if I am still classed as infertile. I am worried if I can ever have children.

[warmapplecrumble]

I never measured my weight but I used to be size 8 uk and now I am 12, 5ftf5.

[MrsG280516]

No one on here could tell you, you would have to go back and see a doctor. I'm sorry to hear you've gone through some awful things

Even with PCOS you're not necessarily "infertile"

[warmapplecrumble]

The problem here is that I haven't gone to the doctor in maybe 4 years, and I have no problems health-wise so the doctor won't refer me to a endocrinologist I would have to go private and we haven't got the money for that. Thanks

[FleurThomas]

Ok so I was diagnosed with 'minor' PCOS at the age of 36 after menstrual complaints most of my life. Symptoms: infertility, LH hormone nearly double the FSH, low progeresterone, facial hair, and enlarged ovaries (no cysts). I am pear shaped with a tiny waist, no belly fat, and my boobs aren't tiny - I'm a 30 E.

[FleurThomas]

Those are the symptoms that got me diagnosed. I also get really bad mid-cycle pain around ovulation, but was told that isn't typical for PCOS

[louthemac]

Hi, I have PCOS, it's the bain of my life I really think you would know if you had it. Sounds very hopeful that you do not have PCOS or if you do it's a mild case. It is a syndrome meaning it presents differently but there are a list of symptoms and most people with it would have at least 2/3 of the symptoms.

The fact you have a regular cycle and no signs of hormone disruption (acne, weight gain, hair loss etc) means you are quite unlikely to have it.

13 seems really really young to have a diagnosis given you may not have completed puberty hormonally?

[louthemac]

So sorry to hear what you have been to also

[McBaby]

I was diagnosed with pcos at 21 nearly 15 y ars ago. I had very irregular periods and scan shows perfect pco. With so many cysts she was going to use them as teaching slides! I also had weight around my tummy. I was told conceiving would be difficult.

In 2011 I got pregnancy accidentally with dd1 I wasn't being careful due to being told about infertility and being in a stable happy relationship. I am now pregnant with dc3.

I had a scan on my ovaries a few months ago not pcos related and the consultant saw no sign of cysts.

So things can change over the years!

[warmapplecrumble]

What does the pain feel like?

[warmapplecrumble]

Thanks everyone, I am worried about miscarriages, is there a way to prevent this? And cause of financial situation really poor at the moment - we don't want a child but I feel like if I go older I will no chance to get pregnant.
Thanks