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TTC Super Ovulation part 3

(978 Posts)
Arianrhod Mon 08-Oct-12 08:30:07

Hey ladies -

There are a few of us who are ttc after mc's, however there will be ladies out there who are also ttc for the first time or second or third without success. If anyone is on, considering or had success on a super ovulation programme then do join us. How long did it take ? Did you try IUI with it.. ? Did you have PCOS?

Kicking this off and hoping some of you will join....

part 1 here:

Part 2 here:

Arianrhod Wed 22-May-13 20:53:24

Flipped over to the new thread now smile

Arianrhod Wed 22-May-13 20:52:20

belly So sorry to hear of your stressful experience, you really didn't need that! Not good of ZW to get that so wrong, I hope they've updated their information now!

Yes I saw those two warnings too, but on reading more they seem to be related to care in the home (which they also do) rather than at their clinic. Not great, I agree, but having had so many glowing testimonies from ladies on FF I thought I'd give them a go and I'm glad I did as they were very professional and their care was excellent.

Try not to worry about the IVIG, I know of a lot of ladies who have had it and they all say it was fine. Best of luck smile

Arianrhod Wed 22-May-13 20:46:23

Here we are

duggs1976 Wed 22-May-13 19:58:06

Here is the new thread if you all want to move over

It is in the infertility section.. Anyone know how to make it an active URL so u can click on and hop over?

duggs1976 Wed 22-May-13 18:40:07

Pebbles they say now they prefer TSH to be between 1 & 2 for trying to conceive. Google it! Is newer guidelines. Not all dr aware of it. Easy to fix with prescription low dose. Fertility NHS dr at hammer smith picked it up with me. Just a thought is a hormone balancing thing. Nothing serious!

BellyD Wed 22-May-13 18:33:39

Hi all, I have been told to take B6 and B12 vitamin supplements for what it is worth. Mel good luck with your trip to Athens whenever you decide to go.

As Sue and Ari asked, my INS story was partly due to my overall apprehension about having IVIG in the first place. Essentially I was told Healthcare at home would do it by DR N, the Nurses at ZW then told me HCAH didn't do IVIG but INS would do it but I would have to source the IVIG myself. I emailed them back to say Dr N was sure that HCAH could do it as he set up the programme with them, but they replied and said no, they don't and how was I getting on finding the IVIG. I did three days of research, it is about as hard to get hold of as hen's teeth. Also many people with serious health conditions need it and so that made me feel guilty. I was gradually getting more and more stressed and wondering what I was paying ZW for. INS wouldn't let me confirm my appointment until I had sourced the IVIG. Eventually tried to email INS to say that I thought I had got hold of it, but the email bounced back, so I googled them to find they had received two warnings from the Care Quality Commission in December - one related specifically to patient care. By this stage I was in a total panic and on the verge of not having it all together. Sent a stressed email to ZW and Dr N came to my rescue with one of the directors of HCAH who said that they do do IVIG and it is now all booked in with them. I don't know where the communication fell down between the nurses at ZW and HCAH, it was honestly so stressful, but as I say, mainly as I am so worried about having it in the first place. I am glad you have had positive experiences with INS, Ari and I am sure they are fine, but these warnings just totally spooked me, but largely as I had been doing such a good job of winding myself up. Sorry to rabbit on.

Love the new thread name Duggs.

Mel3062 Wed 22-May-13 16:27:46

Aw ari there's time yet I so have my fingers crossed!!
Pebbles- yes you're on humira too fingers crossed!!
Thanks for info on mthfr ill check, yey if its one test I don't actually need!! Ill ask him about dqa as hubby will be with me so makes sense rather than try get oh blood taken and transported to Athens!!
I'm in a dilemma as dont know if to go serum next week or June. Flight is £200 cheaper in June but don't know if as its half term and won't need time off whether to just get it over with!! Opinions? X

Arianrhod Wed 22-May-13 15:34:00

Hmm Not liking anyone being told to 'just not worry about it' - especially when you're talking about potential blood clotting. When will you hear about whether the humira has done the trick pebbles? Good about the TSH - QQ though, what time of day did you have the test done? Apparently TSH reduces throughout the day, so those in the know recommend you always get any thryoid tests done as first thing in the morning as you can. I always get mine done by 8am (those commuter walk-in clinics are useful smile ).

DQa testing you can ask Mr S to do for you mel, if you're seeing him - and you should have been tested for MTHFR mutations during your initial testing with him, it would be on the same sheet as the testing for Factor V Leiden. I don't know about humira and antibiotics reacting I'm afraid - you could always email Penny to ask if you're worried, she's very approachable, since you already have a connection going with her?

Me - well, I'm doing ok (injections aside, they're still a nightmare, bruising all over the place) ... except that I'm stressing out that I've not had any implantation signs at all. 6 days past 5 day transfer, with 3 blasts transferred, you'd think I'd feel something if even just one of them had implanted, wouldn't you? I know, some ladies do say they never felt a thing, but I still have it in the back of my head that all of my pregnancies that got past what you'd call a 'chemical' I did feel implantation cramps. This time - nothing. And it's freaking me out a bit! I can wait for the POAS aspect of it, head-stuck-in-the-sand syndrome - if I haven't got a BFN yet then there's still hope! But this not feeling anything at all is getting to me! Crazy.

Mel3062 Wed 22-May-13 14:16:54

Duggs I ment about humira sorry abit off it today!!

Mel3062 Wed 22-May-13 14:16:00

Brown I've messaged you thanks
Where can I get dqa testing and mthr testing?
Pebbles fingers crossed for the humira. Someone's queried that if you're on humira and get positive hidden Greek test would the antibiotics and humira counteract and that's got me wondering if that's what's happened to me as had humira and antibiotics at same time :/ x

Pebbles73 Wed 22-May-13 13:53:32

Just got the results if my thyroid test and tsh has come down from 2.8 to 2.28 so kit sure it really needs treating. confused

Pebbles73 Wed 22-May-13 13:41:50

Just been having a catch up and saw your news Buzzy , great news and fingers crossed! smile

Ari how are you doing? Mr S was very dismissive of my mthfr as well and told me to just not worry about it!!

Brown hope you get on the study!

Duggs loving the new thread name.

I checked with Cheryl today and apparently my blood test results are I'm so she has left them out for Louise. So hope I don't have to pay out for more humira and can get on with things! Going to make an appointment with Care in Milton Keynes re ivf with this new camera imaging, I like the fact they are at the forefront of news technology!

Arianrhod Wed 22-May-13 13:27:52

Interesting studies, thanks brown. I have been taking high doses of individual B6 (82mg) and B12 (methylcobalamin - 1000mcg), as well as l-methylfolate, since .. hmm ... well, I would guess at least October 2011, so I have to hope that my homocysteine levels are ok now since these seem to be what brings down high homocysteine. I've never stopped taking them, even during miscarriages, so have had continuous high-dose supplementation I would say for around a year and a half.

brownstag Wed 22-May-13 12:27:26

Mel, I tried to message you but it wouldn't work. Could you send me your email address please and I'll forward you the email which has 4 files attached (info, application forms, etc).

brownstag Wed 22-May-13 12:23:24

And here's one for anyone who, like me, has had both recurrent miscarriage and infertility:

Interestingly, I had recently started taking a B-complex as well as my multivit before getting pregnant recently, after 2 years and 2 months of infertility. Of course, on getting pregnant, I gave it up; maybe miscarriage occurs once the levels of B vits go down and homocysteine increases?

Also, one of these articles talks about abnormal vascularisation of the placenta due to homocysteine; with my son my placenta was seen to be attenuated at a 26 week scan and he was quite small at birth. Again, a connection with falling B vits and rising homocysteine?

If I get rejected to do this study, I shall cry! grin

Mel3062 Wed 22-May-13 12:21:46

Thanks brown I've looked at that too and everything else i could poss test for and changed vitamins I'm now on Marilyn Gardner fertility support as it has b vits in. Please can you send me the study info and ill try apply? Thanks x

brownstag Wed 22-May-13 12:13:09

Thanks. And here's another, just about miscarriage and homocysteine. I should point out for anyone who doesn't know, you don't have to be vegetarian to have high homocysteine.
And one specifically for you, Ari, if I'm right in thinking this applies to you:
Anyone who wants to test their homocysteine can do so here:

Arianrhod Wed 22-May-13 12:02:10

Intersting article on the very topic you have raised brown :

Arianrhod Wed 22-May-13 11:59:26

brown That sounds like a really interesting study, and being veggie myself as well as homo MTHFR, something I'd be very interested to follow. I think given my current IVF status they'd never believe me if I said I'm not trying to conceive ;) , so I wouldn't be able to apply for the study, but I'd be very interested to find out how it goes.

As for Mr S - well, do remember that other than prescribing BA and high-dose folic acid, he largely dismisses MTHFR as being of any real relevance. It would be nice to think he's receptive to testing for other issues - but putting my own cynical hat on, and speaking from my own experience (eg our DQa match, which only got tested for because I specifically asked for it), I'm going to say he's mostly interested in his own very specific field. Not that I'm necessarily knocking the guy, I really do like him, and I think if you fall into his specific remit you can do very well under his care (as per the number of successful pregnancies under him on the pred thread).

duggs Yep, good title, go for it smile

duggs1976 Wed 22-May-13 11:02:54

Shall we call new thread "assisted conception after recurrent miscarriage" ? Brown will reply on new thread will set it up and post link !

brownstag Wed 22-May-13 10:55:30

On a slight change of topic, I have just applied to be part of a research study looking at homocysteine levels in vegetarians, and how supplemementing with a particular form of B12 affects levels. High homocysteine is known to be associated with miscarriage and all manner of pregnancy problems, as well as many other serious diseases, although this study is actually looking at risk of cardiovascular disease.
Vegetarians are known to have higher levels of homocysteine than meat-eaters, and I've noticed anecdotally that there seem quite a few veggies on here. If I get accepted for the study (I lied and said I was not trying to conceive) I get my levels tested for free, and get assigned to either a treatment or control group. I've always wanted to get my levels checked but it's just one more expense ... (£170).
I've asked Louise to ask Mr S if he knows anything about it. If high homocysteine is known to cause miscarriage, why aren't we being routinely tested? Is it perhaps because the treatment (B vits) can be found in any old health food shop and does not require a private prescription, she asked cycnically?
If anyone else wants to take part in this, I can inbox you details.

Mel3062 Wed 22-May-13 10:04:42

Good luck duggs x
I've had a vitamin d test (£25) and that was ok though I am on supplements anyway! Now off to doctors to get thyroid checked x

Arianrhod Wed 22-May-13 09:48:12

duggs Sorry you didn't see more follies, but you know, it only takes one .. smile Fingers crossed that this one is the one to stick two (metaphorical) fingers up and succeed! What dose were you on this month? And I agree, you would think Mr S would be trying more things to find out what the problem is? Hmmmm.

Should we start a list duggs .. who's IVFing, at what clinic, what stage we're at? We're going to need a new thread too soon, we're at 956 messages already!

duggs1976 Tue 21-May-13 21:10:14

Oh well I've moved to Maidenhead now sue so not far from you i don't think so would love a more local/cheaper place to do super ovulation for a few cycles. What is it called? Also leaving work in July as in central London. Need to find a more local job from September. Hopefully I'll be pregnant and will need to find something contract based? Wishful thinking shock

So just so we don't lose track who is actually IVF ing here ? Almost all of us!?

suemays Tue 21-May-13 20:11:03

ari I have not noticed any side effects on the dexamethasone but I am on tablets rather than injections. I have been really hungry on them though!

belly didn't realise you were going for ivf so good luck to you! Glad you found the tips useful, lets hope one of us had success! I would also be interested in your story with INS as I was thinking of using them for intrallipids too.

duggs I agree mr s should be doing more so maybe you should change clinics. I will prob do 6 months of super OV if ivf doesn't work and then give up but will prob stay with the clinic I am with. The scans and appts are much cheaper and I can't afford to go back to mr s! What dose are you on?

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