My beautiful Nephew was born 4 weeks ago with Aperts Syndrome. He is gorgeous!! My sister and BIL have met with lots of people from the special unit in the hospital, but I told her I would try and find some support net work for her, so she could speak to some parents that have been through it or are going through it, for a chat, or a hand hold -
I cant find any, not in the uk?
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Children's health
cranial facial rare illness support network needed
7 replies
OnlyWantsOneDoesntLikeDM · 16/09/2009 18:48
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