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Toddler with trapped wind at night

(189 Posts)
Tellytub Mon 02-Mar-09 09:16:39

Hi, I am new to mumsnet. I have a ds 18 months, who has suffered terrible tummy pain and trapped wind since birth, being unable to sleep for any length of time at night. He has seen so many docs but we are told that he will most likely grow out of it. We have had trials avoiding all sorts of foods but it seems that all food upsets him. I am constantly searching the internet on information on toddlers with abdominal pain and trapped wind and came across a message on mumsnet from Fimbles who has dd, same age as my ds, with near exact symptoms. Alas the message was posted at the end of 2003. I am desperate to find out if fimbles found a cure for her dd but unable to contact her by CAT messaging. If anyone knows or is in contact with fimbles I would be most grateful if you would let her know of my message. If anyone else has any advice to offer please help. My son has recently been started on Lactulose 10 ml twice daily and Senna 10 ml at night. Initially he passed a lot of wind and slept pain-free for 5 nights but his symptoms recurred and he has been in agony again for 2 weeks. There is also a question of silent reflux and he has been on Ranitidine syrup for quite a while but again we are not really sure if this helps. He also now seems to be in pain, holding his bottom, when passing stools which is maybe once or twice a day.

Harlands11mum Fri 19-Apr-13 15:03:23

Hi everyone.....I think I have finaly discovered what is wrong with our little ones!!! My ds is now 2 and a half years old and has suffered with this condition all his life. It hasnt improved, infact it has become worse. My heart goes out to all of you, its a desperate situation and agonising watching them in pain every day. Most doctors are not even aware of this condition, this is why we all get fobbed of with 'its behavioural problems' or 'they will grow out of it' ds has been under a speacialist pediatrician for a year and a half now in Leeds, they are useless, I have had to do all the research and request all the tests at every stage. They put him on Lansaprozole for reflux straight away but he didnt even have reflux. The tests that he has had are:Blood tests, stool sample tests, urine tests, ultra sound, x-ray, allery skin prick test, Endoscopy, colonoscopy......wheat free diet, diary free diet, resistance to starches diet, merbentyl, anti-biotics, movicol...all with no findings or no success........I have never given up on my ds and have continued to research and push the doctors and fight for him...Then I came accross a condition with the exact symtons that ds has it all started to make sense, especially with them reacting badly to diary, onions, garlic and wheat product...its called a FRUCTOSE MALABSORPTION or FRUCTOSE INTOLERANCE....Now this name is very deceiving as it is not just fructose, its a whole load of other things inclucing FRUCTANS, SUGAR ALCOHOLS and FODMAPS it also includes LACTOSE. This is a digestive disorder where they are unable to digest these things properly and they are left to ferment in the intestine and then produce the painful gas, hydrogen and methane. The syptoms of this condition are terrible, my ds has them all apart from the diareah, he gets constipation with it instead, the syptoms include: Bloating, wind, belching, stomach pain(this is a result of muscle spasms), vomiting(if great quantities are consumed), nausea, headaches, sensitive to light, tremors, anger, mood swings, early signs of depression, ibs, skin rashes, diarreah and/or constipation, itching, hives, colic in babies, loss of appetite, tiredness, ds has got to the stage where he will hardley eat anything because he says its 'ouchie', hurts. He complains of feeling sick after drinking milk, he does not like to be touched, so is a nightmare to get ready. Doesnt like to go out anymore. Always wants the blin close as sensitive to daylight. He thrashes around headbutting and biting when is in pain and is generally upset and moody. Also he has a terrible time with his constipation........but since finding out about this condition I have already made changes to the diet and have made links with the things that do upset him and I can already see positive results
Now the exclusions are massive so you will need to research into the food items allowed, try '' this is a website where you enter the item of food and it tells you if they are allowed it or not. The main things to avoid that come under the FRUCTOSE are fruits, including pears, apples, melon, raisins, fruit juice concerntrate, honey, high fructose corn syrup. FRUCTANS include your wheat products, bread, pasta, cakes, but also vegetables including onions, garlic, leeks, carrots. now SUGAR ALCOHOL is a really difficult one as it is included in alot of things, the main one is sorbital and guess what this is in calpol!! yes they cant have calpol!! and there is no alternative. We always wondered why their condition was worse when they were poorly..because we are shoving fructose down them!! And watch out their toothpaste has it in too. Now FODMAPS is another tricky one and includes LACTOSE, this is why they have trouble with diary products!! Also if they get the shakes this probably means they are suffering from low blood sugar which this condition also this is alot to take in but the good news is there is a test for this condition!! Its called a Hydrogen breath tests. They are given a drink of fructose and then the hydrogen levels in their breath are tested. This is not available in Leeds, so we have been referred to Sheffield Childrens Hospital who specialise in this condition and have the test available. We were supposed to go last week but couldnt get there as you probably know if they are in pain they will not get in their car seat, but we are booked in again for next week. Also ive got a dietician on the case to devise a diet for him. I erge you all to research this condition, look at the diet and request the test. Dont get fobbed of that is a rare condition, the intolerance is rarae as it is inherited but the malabsortionh is common, one in three people have it!!! I will keep you up dated... the food items that I am now trying are lactose free including milk, wheat free, read the labels carefully, genius white bread should be ok, ripe bananas, orange juice in moderation, white potatoes)old ones are better. I tems with glucose are good, they can have golden syrup too. Fresh meats, fish, rice (white), table sugar is ok in moderation as the glucose to fructose ratio is equal...I really hope I have helped you guys and I wish you all the look in the world...please dont stop fighting even though it seems hopeless at times, WE WILL GET THEM BETTER AND ENJOY LIFE AGAIN!!!!XXXXX

Jo2007 Thu 16-May-13 21:58:57

How is everyone getting on? How did the fructose test go? - I wondered about this but my DD was no better on any of the fructose free foods so I knew it wasn't that. I am trialling a miniscule amount of yoghurt every morning now in the hope that maybe her immune system will stop reacting - that's if the issue is allergies in the 1st place that is but her consultant seems to think that is the case and that eventually we should begin to see sings of improvement.
All the best.

Kimski30 Sun 19-May-13 10:08:51

I can't tell you how happy I am to have found this, I actually really started to think I was going mad! When I try to explain to people, I can tell they think I'm mad! My son is nearly 15 months. I believe it is to do with cows milk. I put him on soya and he improved dramatically. He went back on to lactose free milk and symptoms have built up again.... Don't ask me why we went back to cows milk, I read articles that say bad things about soya and I antic I'm doing the wrong thing. Without professional guidance I get worried I'm doing the wrong thing. Nobody knows my baby better than me and therefore I am going with my gut instinct. I am now putting him back on soya and am also going to an osteopath so will keep you updated. I had to post to say a big thank youto you ladies for posting as it has made me feel not so much as a failure xxx

twinplusbigsismum Fri 31-May-13 00:50:43

The probiotic I mentioned previously, nutri advanced ultra probioplex ND Powder (Non -dairy L. acidophilus NCFM and B.lactis Powder) by Metagenics has given me amazing results with my 3! Most nights since introducing this over past couple of months they have been settled by 9.30 -10ish and mainly sleep all night. A thing I never dreampt possible! (I should also mention that coincedentally I also cut out brown rice pasta at the same time as I couldn't get it from Tesco.)

Even more exciting, (on a similar vein to Harlands11mum) I believe and hope that I may have come upon THE ANSWER for my family! I haven't finished the book yet, but would strongly recommend Gut and Psychology Syndrome by Dr.Natasha Campbell-McBride MD,MMedSci (neurology), MMedSci(nutrition) to anyone with children with a digestive problem. I'll be honest, I wanted to wait til I had finished the book before I came on here recommending it, but finding time to read for me, isn't the easiest and so it's taking me a while! I'm about half way through and I'd be lying if I said I wasn't daunted by what changes it looks like I need to make re. diet, but from what I've read so far it seems to fit with my experiences to a tea! Don't be put off by the title or cover! Also if anyone has tried the GAPS route, please let me know! AT LAST I FEEL LIKE THERE IS HOPE!!

Jo2007 Sun 02-Jun-13 18:25:36

Hi Twinsplusbigsis mom. Great news. Did you find they got worse and then got better with the probiotics? I ask this as we were recommended the exact product you are using by a nutritionist but my daughter went right off her food 2 days after starting a small amount and so I stopped it. How much are you using? I always thought it was the fructos content and rice element that did not suit my daughter but the Holland and Barret non-dairy also upset her too.
It is also interesting that you mention the psychological link as that is what both her allergy consultant and now gastro have said. We are due anohter ultr-sound but I am declining the barium meal and endoscopy at the moment given that they (the consultants) do not think they will find anything and so it does not seem worth the risks. I have been able to continue with a tiny amount of yoghurt daily without any worsening of her condition so I am hoping she is moving forward but her growth and weight gain is really slow. Have you got slow growth with yours too? Not surprising really given their low food intake.
My DD too is also awful on brown rice so maybe it was a good omen it was out of stock for you!
Keep making progress!

twinplusbigsismum Mon 03-Jun-13 01:07:59

Hi Jo2007. No worsenening with probiotics. I use 3/4 of the little spoon, around 0.75ml in warm water and a small amount of pomegrate after breakfast.

I think you might find the book I'm reading really interesting. The author says the condition can be cured through diet. From the little you've told me about your DD it may offer a way forward?

My 3 are thriving actually and eats loads, although the diet itself is very limited! I think this is one of the reasons doctors are not very interested and no-one gets it! One of my boys has an issue with what I can only describe as an obsession with food! He does not like to wait for food or stop eating at meal times, sometimes, even though he will have had a hearty meal, and will steal food of his sister or anyone else given the opportunity. Their growth and weight are exactly where they should be though and other than the evening/sleep thing and what I would call slightly irregular/sensitive bowels, wind and hiccups and naughtyness with the wind, none of them have had any other problems and all the symptoms are only really noticable by me my husband and I unless you specifically point it out to someone. (Hope I'm not rambling too much!)

twinplusbigsismum Mon 03-Jun-13 01:34:24

Harlands11mum - been reading your post again. I really feel for you and your child. You have it tough! I do find it very interesting that there seem to be masive similarities between the condition you speak of and those talked about in Gut and Psychology Syndrome book and I can't help but wonder if they are in fact the same thing? When I get chance I'd like to look into Fructose intolerance further. You might also find the book (sorry to keep going on about it, but it has blown my mind!) worth a look! Kind regards x
ps. my previous post made it sound like a walk in the park with mine on reading, not so, as I'm sure earlier posts will show, but it has got a lot better, at the moment! As someone else said, keep looking for answers, don't give up!

Jo2007 Mon 03-Jun-13 14:12:04

Thanks for reply. Re appetite, she would eat and eat, but I limit it as it seems to cause more wind, but I have recently been increasing the portions and so far so good - maybe progress is really starting as before she would cry more and be v. naughty as you noted! As for you, others would not notice problem although I think they would if I were to just give her any foods - I mean if I stick to the foods she is best on. I will look for the book thanks.
Are yours still off all milks? I have been successful for a month now with 1/4 tspn of plain yoghurt every day - i.e. not making her worse and I am wondering whether it will de-sensitise her.
What a good forum this site is turning out to be!

twinplusbigsismum Mon 10-Jun-13 01:04:04

Hi Jo! Yes, mine still off all milks. Daren't tinker with the diet just at the moment, as enjoying the peaceful nights! x

twinplusbigsismum Sat 29-Jun-13 01:55:10

Finally we have a diagnosis! Have had it confirmed today by a Medical Herbalist and Certified GAPS Practitioner that we are GAPS! Now hopefully, we can start to move forward, knowing what is causing the problems and ways we can hopefully address them. Yippee! Anyone started the book?

Jo2007 Sat 06-Jul-13 21:46:43

It all sounds very interesting and promising. Looks like the diet is a lot of work from what I have read so far, but of course would all be worth it. Can't wait to hear how things go.
My DD had an ultrasound detailed abdomen scan this week and no problems noted. It really does seem to be just wind but as we know 'just wind' is not easy at all.

twinplusbigsismum Tue 16-Jul-13 23:47:17

Thanks Jo! Glad you're reading the book. Be interested to know what you make of it! Just awaiting a report from the GAPS practitioner we saw re best ways forward, but I agree the diet as per the book is very daunting, would love to do it properly including the introduction diet, but at the moment with 'real world' time, children's hunger and financial restraints we are trying to introduce elements of the diet slowly and hopefully gradually implement more and more changes. We have started making our own home made stock and vegetable soup. 2yr old Twins love both! Think the ideal is to catch them young!! 5 yr old doesn't like the first soup attempts! But will keep trying!

For those not familiar with GAPS, Dr Natasha Campbell-McBride says that chicken or fish stock-homemade and also made into soup are very healing for the gut. Check out her website!

Glad no problems identified with scan Jo, but I know it's hard. Mine have been having a bit of a rough time again settling at night lately. It's a nightmare! I know that some of you have it tougher than me though!

I don't think what many of us go through as Mum's feel recognised by the outside world of what seems to be perfect parents with their 'perfect children' (who can eat anything and sleep from 7 til 7 with no problems) STRUGGLING MUMS, YOU ARE NOT ALONE!

BazilGin Fri 23-Aug-13 12:28:05

Just in case someone is reading it in need of hope...we are through this now. No change in the diet, I am still bfing but introduced dairy products too. It got much better from 18 months and now, she just started sleeping through the night at 2!
Trumping a lot during the day, but with no pain. I suppose, she just grew out of it, whatever it was.
Fingers crossed for everyone, we have been through hell and back with this.

Jo2007 Sat 28-Sep-13 22:29:54

Hello, any updates? really pleased to have a post from someone who has come through all of this with the problem solved.
Nights and days mainly ok on a very restricted diet. DD nearly 6 now and really wish her diet was more varied and I forever worry about low calcium intake.
Is the GAPS diet making any difference Twinsplusbigsismum? I haven't made any changes re this as although it makes sense I feel that when she was weaned her diet should have been 'healing' then with organic purees etc and yet it was worse then than now.
Keep waiting for more progress.......

mawbroon Sat 28-Sep-13 23:37:25

I know this is an ancient thread, but I wanted to say that in all these cases, something that has to be considered is tongue tie.

It can cause all sorts of problems, including taking in a lot of wind when feeding. Dr Kotlow is a leading expert in this field and one of his articles on this page is about the connection between ties and aerophagia (swallowing of air)

Ties can cause digestive problems. Digestion begins in the mouth, and if the tongue is restricted, it could be that food is not being chewed properly which can cause problems. Also, it is thought that if the muscles which are connected to the tongue are not being correctly stimulated then there can be a knock on effect on digestion.

Most HCPs really have no clue about tongue and lip ties and the far reaching consequences that can occur. You need to seek out people who have taken a specialist interest in this field.

DS1's ties went undiagnosed until age 5. He had allergies/intolerences and suffered bloating and reflux, amongst other things - including hideous sleeping problems. We had his tie revised when he was 6yo and the gastric problems stopped - immediately.

Not every child on this thread will be having problems because of ties, but I would be willing to guess that there will be quite a few.

Ties can cause all sorts of other problems, but I won't bore you with them on here smile

Jo2007 Sun 29-Sep-13 22:20:15

Mawbroon, thank you for this post. Do you have any UK links/specialist details. I am so pleased that for you the problems were sorted - and by something so specific as well.

twinplusbigsismum Thu 28-Nov-13 01:41:30

Hi! I'm still around and still struggling. haven't been able to fully implement GAPS diet, as just not possible when you're already struggling to survive, time wise and financially. Have tried to implement some of the ideas, but not really working too well, to be honest. I got very excited by the prospect of a diagnosis and cure, but other than having a name for our condition, sadly haven't been able to move forward. Most nights at the moment it's around midnight before settling one, two or three of mine and am also dealing with some waking in the night again. Having a tough time coping at the mo. There seems no end in sight, we have brief periods of hope and then for no apparent reason it all goes backwards again. As I write at 1.39 am both twins have woken crying and I've brought them down, so as not to wake the 3rd and Hubby who is up in just over an hour to go to work. Here we go again!

Jo2007 Sun 22-Dec-13 17:47:28

Oh dear, sorry to hear. It always seems to be the case that perhaps we stick to what we find works and hope that things progress from there. That's what I do at th mo, not ideal I know and so bad at Xmas with all the food that they can't have. I have persisted with the tiny amount of yoghurt every day and have also managed to slightly increase some portions - and I know you are ok on portion size which is good - if I increase portions too much, the sleep just goes again. I'm not sure if I've said before but I did meet a child minder who had 4 children of her own and the youngest had had this problem until age 7 when it gradually began to improve. Le's hope we are over the worst. All the best.

LowFODMAPMum Sat 11-Jan-14 07:49:49

No time right now to post properly- did not realise this thread was still active. Like Harlands11 mum would like to recommend the FODMAP diet. Am a bf mum to a two year old due to ongoing constant night waking and constipation issues. Will post more but since starting low FODMAPs things improved. Also Movicol reduced. Daughter been on antibiotics recently and teething so we have gone 'backwards' recently in terms of wind and bloating, but after two years of trying EVERYTHING, low FODMAPs helped. Harlands11mum are you keen to chat is still about- inbox me if so, we could share recipes!

LowFODMAPMum Sat 11-Jan-14 22:43:17

By the way there is a calpol that is fine- it just has sugar.

LowFODMAPMum Sat 11-Jan-14 22:43:48

Try Sue Shepherd book- Low FODMAP diet

Gaff5Oz Sun 19-Jan-14 15:19:42

Hi there, I have a 12 mth old boy who has suffered from gas and my heart goes out to all parents who have to watch their kids suffer. Our maternal health nurse taught us the "Bum dance" which helped us relieve our sons gas pains. To do the bum dance hold your baby by the crotch laying them face down along your forearm with their head near your elbow and the heel of your hand resting against their lower abs. Next, take small bouncy steps while patting their bums with your opposite hand. The small up and down motion will apply pressure from your palm to the lower abs milking the gas from the large intestine while the pats on the bum will release the tension of the sphincter allowing the gas to escape. Add a comforting series of "shhhs" with the rythm and your bub will be asleep on your arm in minutes.

Hope this helps.. cheers

Winterchick1982 Tue 21-Jan-14 14:14:43

My Ds has just turned two and always had wind problems at night, then about 6 months ago he started to scratch himself. I soon realised that the scratching was usually when he was experiencing wind problems but he will often wake at night and scratch for 2 hours or more (arms and legs usually) unable to go back to sleep and keeping me awake too. Doctors keep saying its ecsema and have given me various creams which have helped to ease his skin dryness but not the itching. He also gets it when he is falling asleep in the evening often making for a very long bedtime. I stopped his night time bottle to prevent wind about 3 months ago and then stopped his night time drink altogether. He is gradually improving as it has gone from every night to every other or third night. Just wondered if anyone has experienced this with their child and if they have more info?

Jo2007 Tue 21-Jan-14 22:17:10

Yes, my 6 year-old will scratch around joint areas. If I rub these areas I notice she often passes wind. This is where the medics have said it is impossible to get gas trapped there but if you do some searches there is plenty about gas trapped in the tissues. I don't think it is eczema for my DD but seems linked to the whole problem.

richaraj1 Fri 25-Jul-14 01:30:39

Try asafoetida, a pinch of it in one or two spoon in warm water and give it to drink if the child is more than 6 months old. For babies, put little more asafoetida in warm water and apply it around the navel in clockwise direction. It will surely help

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