my dd's friend has this, funnily enough she had some investigations culminating last Thursday. Apparently her heart is off to 1 side, 1 of her lungs is distorted BUT there is no adverse affect on her health. She MAY have to have corrective cosmetic surgery in the future as when breasts develop, they will grow toward each other. They still feel her sternum may expand - apparently its small and soft still. She has a HUGE fist shaped hole in her chest, she is a very timid shy child howver, this doesnt bother her at all. She is infact quite proud of it! She eats like a bird, they say her stomach is slightly compressed too - little & often.
thanks I'm having a real wobbly day today! Ds had to go to nicu when he was born as they thought he was too floppy with no muscle tone.he was tested for loads of stuff but they found nothing. we took him back at two months and they thought he was still lacking in tone.He had a really bad head lag and would just hang when held in a superman pose.They said they would see him again at five months.I spoke to the Hv and she referred me to physio.I saw them at four months and they said he had the tone of a five week old baby!he has since improved and the physio said he is on he bottom of the scale for his age now.It was the Hv that picked up on his sternal recession they didn't take his vest off at the last consultation so they missed it! It's not his breathing as he can blooming well scream when he wants too!!!!I'm hoping it's a muscle thing that he will grow out of but i'm frightened of the what if!!!
ok appointment today it went well need to go back in two months only a mild case of sternal recession not linked to a respiratory problem.may need xrays next time but a great improvement in his overall tone. a huge weight off my shoulders thanks for your comments they really helped on a wobbly day