Hi,
My 7 yo dd has BECTS (Benign Rolandic Epilepsy) and has both focal and tonic clonic seizures in her sleep. We are considering buying an epilepsy alarm to warn us when she is having a siezure, specifically we are thinking of getting the Brio.
www.epilepsyalarms.co.uk/our-products/
Does anyone have any experience of this product, or any other similar alarm system? I would really appreciated some honest reviews and or advice. At the moment our daughter is sleeping in our bedroom as we all feel anxious about her sleeping where we can't see / hear her in her own room. However this isn't really a long term solution so I'm looking for ways to manage risk and anxiety around night time siezures. I asked her epilepsy nurse what she throught to these devices and she was very non comittal and wouldn't offer an opinion either way. Any advice gratefully recieved!
Thanks.
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Children's health
Brio seizure alarm any experience?
3 replies
whatsitdoodah · 20/09/2018 19:47
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