From eye test to oncology and MRI?!?!

[Bonkerz]

Feeling confused. Avoiding doctor google. Don't know what to think!

Dd age 12 had her eyes tested at local opticians in half term. She left not needing glasses. Optician rang me 3 days later and said she had failed the peripheral vision test 4 times and as a precaution the optometrist wanted to refer to local small hospital for further eye tests.
A week later I had a call from county hospital (not small local) to attend an appointment yesterday (4 days notice).
Took dd yesterday for what we thought was eye tests but after an hour of dd being examined and being asked questions the doctor said she was from oncology and that she needed to speak to her consultant.
After 2 hours we were told dd needed an MRI scan and the word cancer was dropped a couple of times.
Even more scary doctor gave us a list of symptoms to watch for (tbh dd has had headaches and dizziness for months now but I put it down to weather and puberty!) and told if she got worse to go straight to A&E with her case open on oncology.
Got home and got call to take her tomorrow for MRI.

I'm really confused. Don't know how we got here. Are they being over cautious? Could the optician have seen something worrying?
TIA

[Bonkerz]

Anyone?

[MizCracker]

Oh heck. Well it sounds like the optician was concerned by something and lied to you, which is out of order. It’s one thing not to want to worry you unnecessarily, but they should have told you what the hospital referral was for.

Hope the MRI brings some answers.

[honeybeeq]

@Bonkerz my DH failed the peripheral vision test many many times and has been referred to the hospital a lot of times. In his case it's because his vision is shit with his glasses off. However they thought that he might have a pituitary tumour at the hospital, it turned out he didn't but they went through the treatment for the type of tumour that can cause field of vision issues and it wasn't too scary.

I hope your DD is okay x

[OnionBridie]

What an absolutely horrible thing to happen and whilst I have no advice to offer I really do just want to acknowledge what you are going through.

[Katescurios]

It's good that they are doing the tests, if there is something to find you want it found as quickly as possible.

However try not to worry too much as I could have written this story myself at 15 and I didn't have a tumour.

Peripheral vision test showed a really poor result, ophthalmologist looked at the back of my eye, declared he saw something and arranged an urgent MRI for the next day.

I have colabomas in both eyes, in my left eye it does nothing, in my right eye it looks funky when the optician uses the scope and flares in the photography, it's also caused some scarring and some peripheral vision loss which in my day to day life is not noticeable .

[sillyoldowl]

Oh god how stressful for you. Hopefully you will have answers tomorrow. I hope it is ok

[Bonkerz]

It's all a bit disconcerting. Things are moving fast which is good but I also worry it's a waste of nhs resources if it is all clear. Don't understand what's happening at all. Dd is obviously worried too as she blacked out in first lesson this morning and had to come home from school

[TwoGinScentedTears]

Did they give you a specialist nurse contact? You could call them and talk through all this? If not call the department and ask for someone to go through it all with you.

[bluerunningshoes]

dh had that.
turned out to be something else and not cancer.

opticians cannot diagnose. they see something unusual and refer on.

good luck! hopefully it's nothing serious.

[OllyBJolly]

it's a waste of nhs resources if it is all clear

It's definitely not. That is why these tests exist. I'd much rather be sure all these professionals were being over cautious than too cavalier. It's also quite heartening to see how quickly the NHS can move when it has to.

Hopefully it is all clear and everything is fine. Thinking about you tomorrow X

[bluerunningshoes]

it's not a waste of nhs recources if it's all clear!

[Canshopwillshop]

How worrying for you. I hope the positive stories on here have reassured you a little and I really hope all goes well for your DD tomorrow.

[Bonkerz]

Thankyou. Whilst I'm trying to pretend to dd that it's ok I'm terrified incase it isn't. Lots of nervous jokes about "finding a brain" etc and maybe they should scan her big toe instead.

Wasn't given any contact etc just told to take dd to a&e.

Was told that results are quick and over phone if they find something and that the longer I wait for news the better!

[PickleNeedsAFriendInReading]

If she blacked out at school, that sounds worrying enough that I might be tempted to go back, if they've given you a list of symptoms to watch for.

It's good that they are checking thoroughly now, as if it is anything, better that they find it sooner rather than later.

What a worrying time it must be for you all.

[angelichosts]

Something similar happened to me at this age - an eye test leading to hospital, which led to an MRI scan. I was fine, the tests showed up that there was nothing to worry about.

None of us can say whether your daughter will have the same outcome, but I expect many medical investigations lead to ruling out dangerous conditions. If the there is a problem, it's good that it is being picked. Hope for the best and best of luck to you all.

[Calledyoulastnightfromglasgow]

Hi - I appreciate how worrying this is for you.

I think it’s good you are getting the MRI so soon as it will hopefully knock the worrying things on the head.

You say she blacked out this morning? I think you should mention that.

[Bonkerz]

She's blacked out before but usually she goes blurry then dizzy so this isn't new symptoms. She's been fine since coming home if a little lethargic but that's quite normal too.
Thanks for the positive stories. Sounds like it could all be precautionary and I am very grateful to NHS for being so fast and thorough

[WheelyCote]

Big hugs OP


They will have protocols that they follow when certain things are triggered....such as peripheral vision tests. Most cases turn out to be nothing. Try not to worry (easy for me to say, i realise). They may want further investigations but it's all part of the protocol.....they're being thorough.


Stay away from DR Google if you can

[Elliss2018]

Hope you and your DD are okay op. I can't imagine what you're going through! I will keep you in my thoughts

[hendricksy]

Blimey , that all seems very quick . It sounds you are getting rest care . Fingers crossed it's all precautionary.

[SequinsOnEverything]

If there is suspected cancer you have to be seen within 2 weeks. So it's not abnormal that it's all going so quickly. It's not at all a waste of nhs resources, this is exactly what they are there for.

Did you take your daughter in after she blacked out?

[cestlavielife]

The blacking out headaches dizziness and vision issues merit the mri. At least you don't have to wait too long. It is important to rule out any tumour or other issue.
Dd had mri age 12 for dizziness headaches and visual field defect. She actually has a structural anomaly.
..sometimes such things cause symptom s at puberty.
Good luck.

[Jinglebells99]

Hope she is ok.

[ILoveDolly]

They move quickly in these cases in case they can catch something early, but of course, sometimes it will be nothing after all. Don't worry about resources, no one minds!!! make sure to note down any questions that occur to you to ask before next appointment . It isn't always easy to remember what you wanted to ask when you are there.

[Nogodsnomasters]

Good luck for the mri today x