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Children's health

DS constantly sick and hallucinating

8 replies

pollysproggle · 18/03/2018 17:28

DS is 11 and normally a healthy and very active child, he's on the skinny side but I think it's just his build as he eats very well.

For the last 3-4 weeks he's been catching bug after bug, nothing that's left him bedridden but colds, glands up, fatigue etc.
The worrying part is the hallucinations (if they can be called that). The way he describes them it sounds like his perception of things changes rather than seeing things that are not there. He feels everything is moving very fast including sounds plus things he knows are close seem very far away. Ringing in the ears and a headache,
It's hard for him to describe but when it's happening he is very frightened and cries and needs to be in complete silence- it's horrible to watch.
I've googled symptoms and 'Alice in wonderland syndrome' seems to be the closest to what he is experiencing although the frequency of these 'episodes' is different. DS is having several a day and they've started recently as opposed to when he was very young.
We've seen the GP and she had no clue even suggesting antibiotics despite not finding any evidence of infection and no fever. He has been referred to a specialist which takes 4-6 weeks for an appointment.

I'm just wondering if these symptoms are familiar with anyone?
DS has missed quite a bit of school because of it and they have phoned me twice to collect him after having a strange episode- even though once it has passed he'll be fine to continue in class.
I have wrote a letter to them explaining what is going on and asked them to provide a quiet place for him when it does happen- not that easy I know.
Feeling a bit helpless

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PerfectlySymmetricalButtocks · 18/03/2018 17:30

DD has Alice in Wonderland syndrome, she gets it as she falls asleep.

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jugglingmorethingsthanhands · 18/03/2018 17:44

One idea is sounds it could be a symptom of low blood sugar - ketotic hypoglycemia some children get symptoms but don't get medically low, others get symptoms and their BS drops below 3.5. The skinny & vomiting made me think of it.

If it is that when he is poorly you need to give regular drinks to maintain his blood sugars once he has been sick.

Does he smell sweet when he is unwell? Or go a bit grey? Sweaty/clammy?

He doesn't have to have all these symptoms but worth looking out for once you have read a bit more.

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pollysproggle · 18/03/2018 17:52

Thanks for replies.
His symptoms are very much like Alice in wonderland syndrome but from what I've read do happen when the child is falling asleep. DS is having several throughout the day and has only just come on.

I'll check his smell, I haven't noticed he smells sweet but he does get the grey looking complexion. I'll read up on that thank you.

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MyNewBearTotoro · 18/03/2018 17:55

Could it be migraines? I get ‘silent’ migraines where my vision becomes blurred or I get spots clouding areas of my vision, I feel very disorientated and feel overwhelmed by noise or bright lights, but I don’t get a headache at all. I also find they seem to come in clusters, so I won’t have one for ages then I might have several in a day or over a few days.

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pollysproggle · 18/03/2018 18:14

That's interesting, I actually suffer from that too although I do get the headache so maybe there's a connection.

I've just read a bit on the hypoglycaemia and it does sound similar although he is not short of sugar and always eating.
In the beginning I did think it was because of sugar after eating a huge pack of Haribo and drinking Fanta at 9.30pm (with grandma).

I think I'll start a diary in the lead up to the pediatrcian and record what is happening and when and include what he's eating.

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jugglingmorethingsthanhands · 18/03/2018 18:19

Some children/adults get reactive Hypoglycaemia- so could be having rebound lows - keep a note of symptoms and what he eats.

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ElspethFlashman · 18/03/2018 18:23

I had one of tbose episodes when I was a kid. It was bizarre I'll never forget it. At the time the doc said it was a low grade persistent fever. I was put on antibiotics. Certainly they'd be no harm.

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pollysproggle · 18/03/2018 18:41

A few years ago he had strep throat with a high fever and on one occasion was terrified because there was a man in his room!
I later made the connection with fever and hallucinating so that has been one of my thoughts.
I take his temp everyday at the moment and it's always normal and was normal at the doctors Too but maybe if it's a slight increase it could be the case. Such a mystery

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