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Raised TSH level toddler

(6 Posts)
thesunisout12 Thu 08-Feb-18 21:46:38

My daughter's blood test has come back with a high level of TSF of 8, we are asked to come back in 2 months to do a new test. Is there anything we can do in the meantime and what does it mean?

FuckingHateRain Sat 10-Feb-18 14:26:25

I assume you mean the thyroid test to check for hypothyroidism . If so we had similar and before going back for retest we gave him selenium and it brought it down quite a bit. But that was under the advice of the endocrinologist who did the initial test. So you could ask for this option... was the test from gp or specialist?

thesunisout12 Tue 13-Feb-18 12:15:09

Thanks for the input! TSH (thyroid stimulating hormone) is part of the thyroid blood test. The other thyroid levels were fine (T3 and T4).

Were all the other levels fine? Did he have low selenium levels?

Yes, our GP ordered a few blood test as we are having issues with sleep, her digestion etc. She also had a very high level of B12 way off from the normal range, which could mean her body is not processing it properly. Our GP is a bit rubbish and hasn't asked us to do anything and just re-test in a few months. He had given her laxatives as she is always constipated and bloated and was patronising when we told us we need to sleep train her. (Like we haven't tried that hmm ) He also gave us cortison for her rash. I think they are all linked, but he is just treating her individual symptoms..

FuckingHateRain Tue 13-Feb-18 21:26:59

Never tested selenium but we were given it anyway and it did actually help bring it down. She did an ultrasound on ds as well to check the actual thyroid. You see for issues like this you do need to go to a specialist, I doubt the gp knows about selenium etc. Btw we were tested for coeliac as well as it's apparently inter related. Generally any digestion issue or bacterial imbalance issue can cause thyroid issues
Any chance for a referal??

With regards to b12 we had the same we used to be on injections but now we are on lozenges and they do as good job!

thesunisout12 Wed 14-Feb-18 10:04:04

that is really interesting. We actually also had her tested the celiac test as I had a feeling it could be this due to the digestive issues and always being constipated. She alsohas enamel damage which I understood could be due to gluten intolerance. It came back fine, but as I understand you could be gluten sensitive and it wouldnt show up on a test. We eliminated gluten from her diet a few days ago, just to test her for a months to see if we can see any changes. She hasn't been constipated since (and has slept through 2 nights in a row!) and although I think it's too soon to know if it's that, we will keep it up for a while to see if it continues or if it's random.

Really interesting with the selenium. Would I have to go back to the same GP to get a referral do you think? I always feel like he thinks I'm being hysterical and wasting his time..

And is he taking lozenges to raise the b12 level? Her level was 1000, the range was 200-800 pg/mL. Not something he even mentioned, I asked for a print out of the test and discovered it then, so nothing the GP was concerned about..

FuckingHateRain Wed 14-Feb-18 20:44:31

Wrt b12 ours was over 2000, which indicates it might not convert to methyl b12, so he's on methyl b12 lozenges. Well done in the gluten free decision it's a massive step, we went gluten free close to the time of thyroid tests about a year ago and helped us massively in many ways. Your case seems to be a direct effect of gluten intolerance so it could be as easy as this.
Yes if I were you I'd go to another gp for endocrinologist referal, if they say no keep on the gluten free diet and then just retest tsh, you might actually see improvement!

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