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Next step Omeprazole??(6 Posts)
Morning everyone how's everyone doing?
I have an 11week old DS past 4 weeks been on nutramigen for suspected not confirmed CMPA and 2/3weeks on ranitidine for definite reflux currently on 3rd dosage increase and it's honestly like being back at square one.
He's crying in pain after feeds and when he brings up milk he brought up atleast 30% of every feed all day yesterday he's very windy both ends and can whimper when expelling burps and gas.
His grandma and grandad looked after him for 4hrs last night as my husband and I had an evening out the house just us first time in 3months.
We came home to his grandparents telling us how they finally understand our concerns that he had been crying in pain pulling up his legs on and off all night, bringing up clear spit up sometimes milk in it but had drained 2bottles with minimal spit up and no sick but was still upset and and uncomfortable.
FIL use to work in pharmaceutical's for Drs and hospitals and so understand drugs what they do and therefore health problems and the symptoms etc he said looking at him and seeing his discomfort believes it's severe reflux and it's like he's wincing in pain when bringing up feed like acid making him have burning sensation and that's why he's crying maybe ?! They agreed it's not normal and he's not a happy chappy.
In a weird way a good thing because when so close to a problem day in day out battling against GP you start to get paranoid you are overreacting!
The dr calling me tomorrow to discuss how he's been after latest increase and next steps she mentioned adding an anti sickness medicine but I don't think that's the right move.
Would it be Omeprazole or push for change in formula and add thickener to see if that changes anything first before bringing another medicine change/into the mix
Remember still don't really know for sure if dealing with CMPA but for sure reflux is if issue.
We tried everything! My boy was bad reflux although we did get told he was CMPI.
Omeperazole did help my DS but it did not stop the sick at all. It did help take some of the pain away and he was happier on it. You need to stick with it though as it took about 2 weeks I think to see a real difference. And it used to break my heart giving him it as he would gag so bad.
We also got put inn aptinul Pepti which made no difference at all. They tried to put him on Neocate but he was a bit older at that time and we could not get him to take it. I never forced the issue as I did not believe he was truly CMPI.
I’m the end I bought Carobel and omg!!!!!!!!!! It stopped about 80 or 90% if the sick. Again hs to stick with it for a few weeks as he had pretty funny poos for weeks.
Once he was on that we managed to wean him off Omeperazole and change his formula back to a normal once.
I do think ask for Omeperazole as it will help. But I think definitely push for a thickener as well if you can.
But if it is CMPI / CMPa then only a change of formula will help.
Good Luck. It’s incredibly difficult time but it does get better x
Also on FB search on reflux. There are some great forums and you can get so much advice there. I can’t remember the names as I am no longer a member but they were a lifeline to me
Omeprazole and ranitidine sounds very familiar.... ds used to take it for long term, only to mask the real problem. End up having first operation when he was 2.
Everyone said he was having reflux. Only he wasn't.
Thank you @Luckymummy22 appreciate you sharing your experience really helps
My GP seems to feel very strongly about changing/amending one think at a time but it's not getting us anywhere
My gut says formula change, thickener and reflux med change then maybe after 2-3 weeks take away the med and see how things are but is that changing too much?!
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