Ok so I posted on here a few months ago about my daughters back pain, on seeing the Gp they did a urine test which showed blood in her urine, that then triggered a fast track ultrasound scan on her kidneys and bladder, nothing was found apart from her tubes into her kidneys are enlarged but with no apparent reason. Bloods all came back normal. She had an mri, which showed no reason for the back pain. A repeat ultrasound was done 6 weeks after the first, calyces still dilated, no other change. Follow up by paed and she was completely unconcerned, despite my dd still complaining of back pain, by that point also complaining of tummy pains round and below navel and blurred vision now and then, noticed she kept being Clumbsy and dropping things and falling over too. Pead deduces that given length of time back pain been present it’s obviously nothing sinister, says dd has a sensitive back(!?)
By now the back pain has been present for about 12 months.
After pead appt beginning of Oct I decided to start a diary and write down things dd complains about And this month all of a sudden she is complaining about a multitude of things, chest pain, to the left under her nipple area(accompanied by irregular/racing heartbeat, nausea and tingling in her hands) after the second incident I called the dr who had her down surgery for an ecg-they hooked her up for about a minute and printed off the results-is that even long enough to tell them If there’s anything wrong? sternum chest pain, pains in joints-her thumb, her heel, blurred vision again numerous times(took to optician to rule out any eye problems, sight is perfect) she seems to have a mouth sore/ulcer that has been there over 2months and recurrent Candida, which despite treating with cream doesn’t really seem to go away.
She seems ok in herself despite the aches and pains and the only difference I’ve noticed in her is she’s needing to go to bed earlier and I’m having to wake her in the mornings which I’ve never done before as she’s normally the first awake.
I’ve got a Drs appt but not till end of Nov as our Drs are rubbish and you have to wait weeks for an appt.
I don’t know if I’m being paranoid of if there’s something really wrong and no ones picked up on it, I’ve hardly ever taken her to the Drs in her life so it’s not like I’m a neurotic mother or have health anxiety.
I read some research online that looked at leukemia children that presented with bone pain as a symptom and their blood counts were all normal, the only thing elevated was a test called an ldh, which I’m obviously going to now ask if she had that done, and if not, push for that to be done and a repeat of all bloods done back 4 months ago.
Paed not due to see her again till April next yr.
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Children's health
Vague symptoms getting worse and Drs seem unconcerned
makingmiracles · 07/11/2017 10:46
Yes I was planning on shortlisting everything she’s mentioned with how many times she’s mentioned each symptom next to it.
I rang the pead yesterday and was told she would call sometime this week as she was busy in clinic but if I haven’t heard by end of tomorrow I was going to chase it up thurs morning, my Gp is meant to be ringing on a booked telephone appt Thursday too.
I’m just so sure something is going on with dd, I just don’t know exactly what, she never used to be a complainer at all, always had very good health and rarely Ill but the back pain in the past yr she’s complained of and that has increased massively, it used to be every few days or so, now it’s several times a day along with all the other random symptoms too, it makes me sad that she’s got back pain at 7 and when she gets out of bed in the morning it’s the first thing she says,
...ow my back hurts
there’s absolutely no reason for her to have back pain since she’s never carried a backpack up till this sept(but even now only contains pencil case, reading book and her lunchbox) I thought it was her mattress at first so I bought a new one, but that didn’t help either.
I think it sounds potentially serious OP, though fuck knows what’s wrong with her. all I’d say is, if you’re not getting to see doctors by the normal route, don’t be shy about using A&E if she has another bad episode, especially with heart palpitations. After all, what other options are they providing? None!
It might not be the best advice but I’d probably take her to a&e with the chest pains if they’ve worsened this morning and try and insist on scans and bloods. Your poor DD, no kid should have to feel rubbish all the time
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