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Anyone's child had hematuria (blood in urine) but no infection?

(12 Posts)
makingmiracles Sun 23-Jul-17 18:22:12

Just looking for anyone whose had same experience, whether it be good or bad news.

Daughter has had persistent low back pain for months, thought it was mattress, got new one, gave it a few months to see if it subsided but it hasn't so decided to finally take to Drs. Drs couldn't find anything wrong but requested a urine sample, which we did.
Day I took sample in surgery rang in the evening to say there was 1+ blood in urine and could I do another. Following Monday I picked up another sample bottle, got her to do it tues morning and dropped it back down surgery, surgery rang mid morning to say still blood but 3+ this time.
Spoke to dr the following day who called us down for another appt and she has fast track refered us to pediatric urology at hospital, appt this week to have ultrasound of bladder and kidneys.

Obviously I'm hoping all is fine and nothing to worry about but I'm aware of things it could be....

Mangopudding Mon 24-Jul-17 20:29:22

My dd had her urine checked last night. Dipstick showed blood 1+ but no infection. They said it's a mild urine infection or her period might be starting soon. I really hope it's just her period about to start.

Hope everything turns out ok for your dd and please update.

makingmiracles Tue 25-Jul-17 00:08:29

Hi, thanks for your reply, had a vague answerphone message left from dr at end of surgery today, rang straight back but surgery closed so couldn't get a reply, think she said something about paperwork in the post? Wondering if they sent urine to cytology and if they've had results back, will ring first thing tomorrow as she said she has left a note on the system.
Unlikely to be period with my daughter due to age, she only 6.

How old is your daughter? What will they do with her, test again at some point?

PhDPepper Tue 25-Jul-17 00:48:32

She will probably be referred to a urologist because they will want to rule out infections and other more serious kidney issues. As she's only six it makes sense for her to be referred sooner rather than later. She might have an reciting infection but to rule everything out they will probably refer her due to her age

Mangopudding Tue 25-Jul-17 08:12:49

My dd is 12. I'm going to take her back to recheck her urine and ask it to be sent off to the lab. She's on antibiotics.

makingmiracles Tue 25-Jul-17 10:01:48

No more info from Drs, just said that they have sent a letter to consultant pead asking for an appointment. I asked if we would know on the day on Thursday if they find anything sinister on the ultrasound and was told yes, they would contact my Gp letting them know and the Gp would phone me.

InSpaceNooneCanHearYouScream Wed 30-Aug-17 14:03:02

Any outcome yet OP?

LondonLassInTheCountry Mon 04-Sep-17 00:04:31

Sounds like it could be kidneys....?

makingmiracles Wed 20-Sep-17 21:23:54

No real idea just yet, basically had another paed appt after the ultrasound and she said the caylic /caylix(sp?) (tube into kidney) was larger than it should be but that was all that was picked up on the ultrasound, she will be rescanned in 6-8weeks for them to have another look at it, which I'm guessing we will have appt through for quite soon.

She was very good and throughly examined her and took quite a few bloods, apparently all the bloodwork came back fine and she has referred her for an MRI of her spine, which is next week.

In her follow up letter she says she's not certain but she thinks it could be IGA neropathy, which as I understand(googling) is a benign kidney disease, which people can have and go through life ok but 40% of people with it will need dialysis/kidney transplant with 20yrs....I think they can only diagnose it with a kidney biopsy so wether they will want to put a 7 yr old through an invasive procedure like that or wether they will just monitor her, I don't know and will ask these questions at the next pead appt in October. She's still complaining of back pain so I'm hoping we might find something out after the MRI

InSpaceNooneCanHearYouScream Fri 22-Sep-17 18:25:59

Well at least you're a bit further forward . I'm quite surprised she hasn't been referred on for further kidney scans/ urologist though, particularly if they suspect a kidney disease.

makingmiracles Tue 17-Oct-17 13:30:43

Well still no further forward and more unsettled than I was before tbh.
Had pead appt yesterday, MRI came back normal, although when she showed me the MRI on the screen it showed a lump on her upper back, dr didn't know what it was, said oh it's probably what she was lying on, then few minutes later said it was prob a fatty deposit under the skin?!
Told her dd had been having tummy pains below belly button for the last few weeks, she examined her and said she could feel poo but other than that all normal, told to not pay attention to it when she's complaining of tummy ache and just try and distract her(?!)
Still no answer to either the back pain, or the blood or the dilated caylx so not really any further forward, she has another kidney scan at the end of this month so they will look to see if that has changed or stayed the same/got bigger or smaller etc, other than that they don't want to see her back in clinic for 6 months!
As we were leaving ca did her urine and urine showed red and white cells it it -think it said 15% of each, which has worried me as up till now there's only been red cells in her urine. Drs response for her back was there's nothing mechanically wrong, I think she just has a sensitive back(?!)

Feel quite unreassured at the moment and can't understand why they are not doing more to find out the cause of the blood, White to me would suggest there's some sort of infection/inflammatory response going on inside her, she already had it cultured but no infection was found. Can't believe she won't be seeing anyone for 6months.

InSpaceNooneCanHearYouScream Tue 17-Oct-17 22:18:43

I don't think that's good enough. If I were you I would be asking for a referral to a paediatric urologist, based on everything that has been found so far.

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