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Chronic constipation in 4.5yo

(13 Posts)
KittyandTeal Wed 17-May-17 16:34:44

I posted on behaviour and development but thought I may get more response here.

We have just seen the paediatrician after almost a year of back and forth to the gp. My dd has been diagnosed with chronic constipation. She is back in nappies as she almost constantly soils. We are at between 2-7 nappy changes a day.

The doc has said her rectum has stopped sending the message to her brain that she needs to go. She's on movicol, senna and liquid paraffin atm and has been for a week.

The thing I most worried about is school. I have just met with her new class teacher to explain things and she was lovely. They have facilities at school to change her but at certain points during the day they won't have the adults to do it. Therefore it may be a case of part time (although that can't be for long as she's statutory school age by end of sept) or I will need to go and change her.

I work at a school so I know these suggestions are absolutely reasonable on their part. They cannot loose an adult teaching a group to go and change one child.

However, I'm really stressed about it. We're following the doc advice to the letter (I think part of the problem so far is I've tried to follow too many people's advice and none of it has worked)

I guess I just want a hand hold and to hear from anyone else who has been in the position of having to send their child to school still not fully clean (she was fully toilet trained for a year before this all started but has obviously gone backwards a fair amount)

SleepForTheWeek Wed 17-May-17 22:42:57

Sorry, I can't offer much advice re school, but I'll hold your hand! My 2.5yo is on Movicol for constipation/withholding and I know how much it can affect the child and whole family. It's awful 😔.

There is a really good group on FB called 'Movicol mummies' who I'm sure will be able to offer you loads of advice.

Best of luck

Littlefish Wed 17-May-17 22:47:31

You've still got 3 months before she starts school and a lot could change by then.

Is her birthday in September? In which case, she won't be statutory school age until January. As far as I know, the school cannot insist on you coming to change your child.

KittyandTeal Fri 19-May-17 20:16:32

Thank you sleep. I'll look for that.

Yes little, it'll be statutory from Jan but my school senco tells me after 8 weeks they'd have to apply to county to extend her part time timetable. I'm hoping things change or settle down a bit before sept

Roomba Fri 19-May-17 20:42:20

DS2 was in this situation a year ago. He started reception in September and I was panicking about it and having to go in and change him, him being picked on and so on. The movicol he was on just seemed to cause explosions then he'd go back to not pooing for a week or more.

Luckily, DS has somehow managed never to have an accident at school. I totally banned nappies in about June last year, which was a nightmare for a few weeks and I felt as though I was always washing and cleaning poo up. But making him use the loo, despite his extreme reluctance, meant things did improve over the summer. By September he was still very constipated but was managing to have bowel movements every few days at home. Since then he's just improved and improved and now has a poo pretty much every day with no issues.

A lot of people said to me don't panic there's time before school starts and he'll improve before then. I didn't believe them and certainly wouldn't have believed he'd be doing as well as he is by now. So don't give up hope is what I'm trying to say, I suppose. 3 months is forever for a child of that age. I would try and get her into using the loo asap though, even if it is a nightmare short term.

KittyandTeal Sat 20-May-17 08:37:58

Thank you roomba

How did you go about making him use the loo? My dd absolutely refuses. She'll sit there after meals but won't even consider it even when I can tell she's hiding to withhold. Did you bribe or were you just really strict? I'm so worried about making it worse!

WhereTheFuckIsElsa Sat 20-May-17 11:49:20

Kitty we've been through this as well - I bribed to be honest and gave lots of iPad when he was sitting down but I insisted more in the morning rather than after meals as the natural elimination happens more in the morning. Did GP tell you to get her to sit down after meals?

Good luck, it will get better, mine is fine at school but I do give him lots of warm water in the morning to relax the bowels and get him to sit at the toilet for 5-10 mins X

cestlavielife Sat 20-May-17 11:51:28

Ask for psychologist support and specialist nurse

KittyandTeal Sat 20-May-17 18:30:37

Where yes the paediatric consultant we saw said 5 mins after each meal for now to start the process. I didn't think about warm water, that's a good idea. She's not really got any bowel routine yet but I think once the medication clears her out then that may settle it down.

Cest I think she does need psychologist support but the Gp said she needs to go through the medication etc. I think they'd rather not spend the money on it. She is having a few 'one off' play therapy sessions through sands and she's on the waiting list for play therapy. If we had more money I'd pay for it privately but we just can't stretch that far atm.

KittyandTeal Sat 20-May-17 18:31:54

Sorry, quick question...specialist nurse in what? Like a continence nurse? Someone else suggested requesting a referral to continence nurse

cestlavielife Sun 21-May-17 12:55:36

Confidence nurse yes

cestlavielife Sun 21-May-17 12:57:24

Continence

KittyandTeal Sun 21-May-17 16:33:42

Brilliant thank you cest. I will definitely ask at the next appointment. Atm I think we're still in the 'clear out' stage

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