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Oxygen dependent beyond 2

(1 Post)
MommaGee Mon 10-Apr-17 11:27:36

I'm struggling to find anyone white child was / is o2 dependent beyond 2 yoa, especially 24/7 dependent. A few people i've met their DC were on say 0.5 or 0.1ltr at a similar age and soon weaned off but has still on 1 lite.
I'm wondering if we'll ever get off and how people manage between the age where there mobile but too small to carry their own o2

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