My dd (15) has been given a provisional diagnosis of postural orthostatic tachycardia syndrome and she is waiting to be seen by a specialist at the Royal Brompton Hospital.
I'm feeling really guilty because I wasn't really taking her symptoms seriously. I initially took her to the GP because she kept feeling dizzy, going faint and has passed out a couple of times. I thought it was probably to do with teenage hormones and the fact that she can be a bit dramatic at times. She's also been complaining of headaches and I've just been telling her to get on with it and given her the odd paracetamol.
We saw the paediatrician earlier this week and they did the lying down to standing test and dd heart rate more than doubled.
I feel terrible that I didn't take her seriously.
I'm also worried that her symptoms will become more debilitating, as at the moment she does mostly get on with things and lives life to the full.
Is she likely to get worse? Does anyone else have experience of this?
Thanks for reading
Please or to access all these features
Please
or
to access all these features
Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.
Children's health
PoTS
13 replies
heartknot · 03/11/2016 15:54
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.