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Hydrenophrosis operation in baby - what to expect???

(3 Posts)
Lalalanotworried Sun 29-May-16 01:20:45

DS has severe hydrenophrosis to right kidney and is up for surgery in a few weeks time when he'll be 8 months old. I'm terrible with medical terminology but the problem is with the tube (ureta?) being too narrow, so they're going to remove a section, reattach, put a stent(?) in, which will be removed again 6/8 weeks later. I'm told the surgery won't be keyhole, as in they'll be properly opening him up. He'll have a tube sticking out for after op. Can't remember for how long. Couple of days? Can I hold him when he's like that? What if I catch it??

I have a million questions about what to expect that I forgot to ask the consulant. Can anybody help with any of them please...?

- Will I be able to pick him up as soon as he wakes up from ga?

- How will he be in himself after surgery/ hours later/ the next day etc? I've been told to expect at least 4 nights stay in hospital. Will he be poorly himself for all of this?

- Will he be in pain? What effect will the pain mess have on him, eg. Will he be 'out of it'?

- Will he be in a private room or an open ward thing (I know he'll be in HDU for the first night, but what happens then?) I'm worried about privacy for breastfeeding, quiet for naps etc. Am I just going to have to get over that?

- Will DD (3) be able to visit? She's extremely sensitive and attached to him (not to mention how's she going to deal without mummy for 4+ nights!!!) and a natural worrier...

I think that's all... I'm honestly worried sick. Any advice/ experience at all very much appreciated. TIA!

strawberrypenguin Sun 29-May-16 18:59:42

My DS had what I think from your description the same operation when he was 4 months old. He had a pelvic urinary junction blockage (tube between kidney and bladder) the had surgery to remove the block and a drain left in for a few weeks after (can't remember how long but I don't think it was as long as 6 weeks)

He recovered really fast. Was 'himself' again almost straight away when coming round from surgery.

The drain (tube into bag) didn't seem to bother him at all and we very quickly got used to lifting it with him etc. I honestly think the whole thing was harder on us than him! I think there's a lot to be said for not knowing that something is supposed to be hurting! His recovery was amazing.

He has a scar obviously but he's 4 now and it's quite faded.

strawberrypenguin Sun 29-May-16 19:00:49

Re pain management they gave paracetamol and ibuprofen suppositories.

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