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Children's health

Charge Syndrome?

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Tiff1989 · 13/05/2016 14:31

Hi, my son is nearly 6 weeks old. He has charge syndrome. Struggling with coming off the ventilator at the minute with no apparent reason...anyone have any experience of this?xx

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cestlavielife · 13/05/2016 20:28

Hi it must be hard gor ypu. .. speak to uk support group to get advice frim others
www.chargesyndrome.org.uk/

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