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Is this normal or what could it be???

(18 Posts)
Judgeaway Thu 31-Mar-16 18:30:23

So ds2 is 3.9 yrs he is undergoing asd testing and is non verbal so can not communicate with me! So when I pick him up or change his nappy etc is bones/joints make like a popping sound and feel like there moving confused. It is really hard to explain but I am starting to get really worried. What could it be can anyone reassure me please

Judgeaway Thu 31-Mar-16 18:31:14

Don't know if it makes a difference but also he will not walk very far at all

AnotherTimeMaybe Fri 01-Apr-16 02:43:26

He's probably hypermobile it's common in asd
Has the GP checked him?

Judgeaway Fri 01-Apr-16 08:36:53

No I've never mentioned it b4 as I thought it was just his joints getting stronger but now I'm noticing it more. What is hyper mobile? Sorry if I sound thick

Judgeaway Fri 01-Apr-16 09:05:36

Also how do they test for it? We are at the gps tonight so would like to mention it while we are there. Thought getting some tips and advice might be nice, because with him been non verbal the gps dismiss a lot of what I say thanks again

Judgeaway Fri 01-Apr-16 11:15:48

I'm at the gp at 3 so any advice before then would b great.

lamusic Fri 01-Apr-16 12:53:15

I don't think there's really a 'test' for it. Here's the definition j*oint hypermobility means that some or all of a person's joints have an unusually large range of movement.*

Link : http://www.nhs.uk/Conditions/Joint-hypermobility/Pages/Introduction.aspx

AnotherTimeMaybe Fri 01-Apr-16 14:45:12

So sorry couldn't reply earlier
He needs to refer you to an Orthopeadics or at least a Physio
It's easy to check some joints are just more flexible or they make clicking noise

Good luck

Judgeaway Fri 01-Apr-16 19:55:08

Thanks he didn't even look I mentioned it and he just said its nothing so don't worry

cestlavielife Fri 01-Apr-16 21:37:36

If he can't walk v far he needs referral to community physio for assessment. You should be able to self refer if gp won't. Yes it may be just hypermobile joints but it s good to know what exercise helps. See a physio.
What communication strategies are bring tried eg picture exchange PECS ?

Judgeaway Sat 02-Apr-16 07:10:31

I will ring his ot and see if she can help me see a physio thanks. Nothing is been tried yet he is currently on his asmpact so should have his diagnosis very soon. I have been trying picture communication with him myself at home but he doesn't seem to get it

Judgeaway Wed 06-Apr-16 08:37:03

Hi sorry for re bumping this again. Please can you tell me how I would go about self referring to physio?

cestlavielife Wed 06-Apr-16 16:12:18

try and get on a picture communication course to learn the techniques. or see if there are any PECS videos online. it is as much about repetition and your behavior/responses..try and get on an early intervention ASD course asap...

physio: find /google the local physio community service -look for the number for community pediatric physio. call them. or ask hv for the number. tell them you happy to take a cancellation appt

Judgeaway Wed 06-Apr-16 18:22:28

Thankyou for that information will look into it all tonight and start making phone calls tomorrow. I've realised today how far he can bend his wrists and it isn't in the "normal" range

GrimmauldPlace Thu 07-Apr-16 09:42:52

You mention you have an OT. My DS's OT along with his paediatrician diagnosed his hypermobility so your OT may be able to as well.

LIZS Thu 07-Apr-16 09:45:14

Does he naturally sit cross legged or on his knees with lower leg out to the side (like a w shape) ?

cestlavielife Thu 07-Apr-16 10:53:03

check whole family on beighton score. hypemobility can be familial.
can also be part of a syndrome.
eg my son with no verbal speech (he now communicates well with speech app on ipad) ASD hypermobility etc has a microdeletion on chromosome 17 - you might want to also pursue genetics later on

cestlavielife Thu 07-Apr-16 10:53:18

www.physio-pedia.com/Beighton_score

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