Is this normal or what could it be???

[Judgeaway]

So ds2 is 3.9 yrs he is undergoing asd testing and is non verbal so can not communicate with me! So when I pick him up or change his nappy etc is bones/joints make like a popping sound and feel like there moving . It is really hard to explain but I am starting to get really worried. What could it be can anyone reassure me please

[Judgeaway]

Don't know if it makes a difference but also he will not walk very far at all

[AnotherTimeMaybe]

He's probably hypermobile it's common in asd
Has the GP checked him?

[Judgeaway]

No I've never mentioned it b4 as I thought it was just his joints getting stronger but now I'm noticing it more. What is hyper mobile? Sorry if I sound thick

[Judgeaway]

Also how do they test for it? We are at the gps tonight so would like to mention it while we are there. Thought getting some tips and advice might be nice, because with him been non verbal the gps dismiss a lot of what I say thanks again

[Judgeaway]

I'm at the gp at 3 so any advice before then would b great.

[lamusic]

I don't think there's really a 'test' for it. Here's the definition joint hypermobility means that some or all of a person's joints have an unusually large range of movement.

Link : www.nhs.uk/Conditions/Joint-hypermobility/Pages/Introduction.aspx

[AnotherTimeMaybe]

So sorry couldn't reply earlier
He needs to refer you to an Orthopeadics or at least a Physio
It's easy to check some joints are just more flexible or they make clicking noise

Good luck

[Judgeaway]

Thanks he didn't even look I mentioned it and he just said its nothing so don't worry

[cestlavielife]

If he can't walk v far he needs referral to community physio for assessment. You should be able to self refer if gp won't. Yes it may be just hypermobile joints but it s good to know what exercise helps. See a physio.
What communication strategies are bring tried eg picture exchange PECS ?

[Judgeaway]

I will ring his ot and see if she can help me see a physio thanks. Nothing is been tried yet he is currently on his asmpact so should have his diagnosis very soon. I have been trying picture communication with him myself at home but he doesn't seem to get it

[Judgeaway]

Hi sorry for re bumping this again. Please can you tell me how I would go about self referring to physio?

[cestlavielife]

try and get on a picture communication course to learn the techniques. or see if there are any PECS videos online. it is as much about repetition and your behavior/responses..try and get on an early intervention ASD course asap...

physio: find /google the local physio community service -look for the number for community pediatric physio. call them. or ask hv for the number. tell them you happy to take a cancellation appt

[Judgeaway]

Thankyou for that information will look into it all tonight and start making phone calls tomorrow. I've realised today how far he can bend his wrists and it isn't in the "normal" range

[GrimmauldPlace]

You mention you have an OT. My DS's OT along with his paediatrician diagnosed his hypermobility so your OT may be able to as well.

[LIZS]

Does he naturally sit cross legged or on his knees with lower leg out to the side (like a w shape) ?

[cestlavielife]

check whole family on beighton score. hypemobility can be familial.
can also be part of a syndrome.
eg my son with no verbal speech (he now communicates well with speech app on ipad) ASD hypermobility etc has a microdeletion on chromosome 17 - you might want to also pursue genetics later on

[cestlavielife]

www.physio-pedia.com/Beighton_score