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Recovery time from open heart surgery...anyone got any experience?

(5 Posts)
hackneyzoo Wed 09-Mar-16 22:27:15

DS (7) is due to have open heart surgery soon. He had a thoracotomy last year and bounced back pretty quickly. Am hoping this will be the same. Surgery is to remove a tumour that has grown rapidly and is surrounding his aorta. Has anyone got any experience of this? How did your child cope with the surgery? DS is normally fine with a GA and has had several over the years, but am worried about how sore he will be afterwards and how it will restrict him.
The surgeon, who I have complete faith in, was very to the point when we met with him earlier, and glossed over the 5% mortality/ complications risk. We'll get a chance to speak to him before the op again, but am slightly terrified of the implications of operating so close to the heart (and spine).
The surgeon is a top cardiothorasic paediatric specialist, but he is doing the operation under the request of Ds's oncologist and no one can really say anything about outcome other than they will remove as much tumour as possible, get a decent stab at a good biopsy and hope that it doesn't grow back. Luckily it is benign according to last year's biopsy results. However, this is the second random tumour he has had since birth, no firm diagnosis have ever been reached, and this one is growing rapidly. Anyway, am dealing with one thing at a time, so any reassurance about open heart surgery would be much appreciated.

BarbarianMum Thu 10-Mar-16 13:41:32

Not directly comprable but a friend of mine (late 30s) had open heart surgery a couple of years ago. She was out of hospital after 7 days but very weak for the next month and it took her a good 3 months to be back to normal (only she was better than normal due to the surgery). She found the biggest problem were her broken ribs - once these had mended her recovery was quite rapid.

I would think child would recover much faster than an adult though.

Wonderfulworcestershirelady Thu 10-Mar-16 23:08:22

A close relative of mine ( 12 yrs old) had OHS a couple of years ago. She had surgery on aortic valve. She was healthy pre surgery although surgery was needed because they wanted to correct defect before her cardiac function deteriorated. She was in high dependency for about 3 days and was discharged after 5 days. Although her surgeon had originally said 6 weeks off school her recovery and healing was rapid and she returned to school after 4 weeks.

hackneyzoo Thu 10-Mar-16 23:15:05

Thanks for your replies, they are reassuring. smile

hackneyzoo Tue 15-Mar-16 09:14:04

Anyone else got any experience?

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