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6 year old soiling

(6 Posts)
DesperatelySeeking2016 Wed 03-Feb-16 19:00:54

Dd had been on a wheat free diet since the age of 1. Last year the paed decided they needed to test if she was actually coeliac. She started eating wheat in March last year and was tested in the summer the results were negative.
Over the last year she has really changed, at school she holds it together but at home she is vile. Aggressive, rude, emotional. Every hair brush is a battle, there are foods we can't eat because she doesn't like the smell and we are constantly on edge for the next tantrum. She is very anxious about a lot and it is really upsetting. She can also be wonderful, sweet, funny and mature but this is becoming rarer.
She has always had damp pants- never wets herself totally but there is always a dribble. And since large March she started soiling herself- quite irregularly at first.
The gastro decided she was constipated (the gp had previously felt her stomach and said she wasn't), prescribed senokot and nothing changed, they have now prescribed movicol and she has started pooing herself daily. She is so embarrassed and is becoming quite secretive about it. She won't change her pants at school and we are really worried about bullying.
We are seeing the school nurse on Monday to talk about it but any advice would be appreciated? I'm not convinced she is constipated but the dr is adamant. Can I demand they prove it?! I would like to take her off wheat to see if there is an improvement but without a dr's note school would not give her a wheat free meal. What do we do?

DesperatelySeeking2016 Wed 03-Feb-16 19:01:10

Wow that was long, sorry!

Thesunrising Thu 04-Feb-16 01:04:43

If your daughter is constipated, getting the movicol dosage right can be really tricky. NICE guidelines are to do the disimpaction regime then drop down to a daily maintenance dose, but it can be a lot of trial and error to get the balance of how much to give - I'm still struggling to get it right with my daughter! Have you been on the ERIC website? Lots of good advice there and they have a helpline you can ring or email to get more personal advice about the specifics of your daughters condition. It can be a long haul to crack these problems but it's not uncommon and hopefully the school nurse will have some supportive and useful advice for you.

soupmaker Sun 07-Feb-16 12:56:59

Hello

Our DD1 has just turned 8. She potty trained just b4 she turned 3. However, she has never been reliably dry until about 6 months ago and she soiled on and off for years. She is another one who always had damp pants.

She has been seen by Bowel specialists, renal nurses and continence nurse for over 4 years. She's had loads of tests, scans and the like and been seen by CAMHS.

She takes tablets for irritable bladder and movicol and dulcolax for the constipation.

Routine has really helped to get her dry and clean.

The constipation made her bladder control poor. Hence damp pants. She also had anxiety about using toilets which compounded the issue.

Our DD pooed everyday but was still constipated. So it took a long time to get a proper diagnosis. She had probably been constipated since she was wee but because she did poos everyday we didn't realise. She need to do the movicol disimpaction regime twice and it took a good year to get the levels right for her.

So our experience is that of a long haul and set backs along the way. UTIs, blips around birthdays and Christmas and holidays when there is excitement and changed surroundings, and days when we are knackered and tell her off - which doesn't help at all.

Get help and support. It's exhausting having to deal with this but you will get there in the end. thanks

DesperatelySeeking2016 Sun 07-Feb-16 22:13:19

Thank you so much for replying. I contacted ERIC earlier in the week and they were great. Sent me lots of info and I found out I had been making the movicol wrong (mixing in milk rather than in water). They suggested that she needed to do the disimpaction routine but the dr hadn't advised this and we are away at half term which would have been the ideal time to try.
We had a bit of a breakthrough at school when she admitted to her teacher that she had had an accident and sorted herself out. We were really proud of her and bigged her up loads! The damp pants have been on the increase and there was no poo today so that is a bit frustrating but I have ordered a vibrating watch which I am hoping she will use (rather than ignore) to remind her to go to the loo. Fingers crossed.
It has really dawned on me over the last few days that she is really embarrassed that people will find out she still wets/poos herself and that breaks my heart sad

soupmaker Mon 08-Feb-16 00:05:12

The vibrating watch worked wonders for us too. I'd forgotten about that! As did having a chat with her teachers and getting them to really understand that when DD1 needs to go she doesn't have time to put her hand up and ask. She has a free pass out of class for the toilet.

The thing that really turned things round for DD1 was her deciding to stop holding in both wee and poo. She did that herself. With support from us, but she had to decide to do it!

I thought we'd never ever get to where we are now. But I can leave the house now without a bag full of clothes and not worry about DD1 at school.

Hang in there.

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