Following a paed appointment for Dd1 who is 9, we had a letter to say we are being referred to orthopaedic hospital for tests as they suspect her limp and worsening mobility problems are due to osteopenia caused by steroid use (she's on steroids permanently as is dependant on them due to genetic condition ) .
This is progress in that hopefully the referral can get us help but does anyone know how this is likely to pan out long term? Will this mean being less active (she's pretty inactive at the moment due to this issue but I had hoped she would improve once they sorted out what the issue was)
Also they mentioned "kyphotic posture" , is this part of the same thing? Her problem is with one leg but the kyphotic thing is because her spine looks curved from what I can gather.
She also has a permanently sticky eye and I am worried it's all related but it's so hard to tell as she's been unwell generally with the condition this year .
Any advice or experience appreciated !
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Children's health
Osteopenia from steroids-any experience please?
9 replies
Used2bthin · 19/12/2015 09:29
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