My 9 year old dd has just shown me that her ankle dislocates and she just pops the bone back in. She thought this was fairly normal. When I chatted with her she tells me it happens about once a week, mostly during PE. Her wrists do it too, making colouring tiring. When she was 3 to 6 she saw paediatrics regularly as she has a very weak core strength. And in turn weak fine motor skills. Physically she is about three years behind her peers.
Paediatrics have discussed dyspraxia and hypermobilty but have never been certain of either. After three years of appointments with hospital, OT and physio we sort of gave up as no diagnosis and we have understanding of the problem.
DD enjoys all sports at school, amazingly she has a personality that doesn't seem to mind always being last. She enjoys being in a team. She can just about ride a bike but stops after a couple of minutes, she has swimming and dancing lessons. She is very intelligent so she copes by concentrating on technique.
We have an appointment with hospital about dislocation. I am worried that it will just be more appointments and no diagnosis as before. It will worry my daughter and after physio we will end up as confused as before as to what if anything is the matter. Does anyone have any advice as to what I can ask the doctor? Please help as I have no one else I can really ask
The dance teacher might be able to advise, and give ankle strengthening exercises, and most dance teachers learn about hypermobility as part of their training (ballet teachers definitely do), so will probably already have noticed if your dd is hypermobile.
She is 9. So this has been going on a while but dislocation is news to me. I have spoken to dance teacher, she doesn't think dd is hypermobile. So that confuses me even more. I don't know what else it could be. But thanks, I will let her know that she is dislocating wrists and ankles. I'm just at a loss as to what can be done
Sounds like hypermobility to me. Physio advice and exercise is a must - she will have to continue these independently long-term. If she is having recurrent dislocations then she should maybe see a rheumatologist as there are some conditions they may want to test for, purely because there can be other implications in the body apart from the increased joint movement. Have they ruled out Ehrlos-Danlos syndrome or Marfan's?
Wow that's a coincidence - my DS told me this morning that he had 'dislocated' his wrist and couldn't get it to go back in. He too said that it often happens to him, usually in PE and that normally he just pulls/wiggles it back in. He's 13 and this is the first time he's mentioned it. Physically, he's fine and is quite good at sport but he did need physio on his feet as a baby. I'm going to make an appointment to see the doctor with him.
Thank you all, I have checked her on the Beighton score and she does not seem to be hypermobile. I've also looked at Ehrlos danios and Marfans but doesn't seem the answer either. I am not sure what subluxation is.
I spoke to my dd about pain issues today and she tells me it hurts when she stands up for any length of time, like when I am brushing her hair, so that's about 5 minutes at the most.
Her appointment is with rheumatology but I am worried she won't fit into a simple solution and she will be passed to physio and we will be left confused as to what's wrong and how much of a problem it is. As that's what happened when she was younger.
Cosytoaster sorry to hear about your son I hope you get support and help from GP.
Howtorebuild, I am so sad to read your post. I feel my daughter doesn't admit to pain. She is always falling over but even as a toddler didn't cry if she hurt herself. She has insomnia and I've always wondered if it's pain related. I'm the type of parent who encourages her children to just get on with it. My attitude would make her feel there's no point complaining. I need to talk more with her before we go to the consultant. Thank you so much for your help
Yes that type of get on with it along with not believing is very common in the human race, hence why many people like myself say nothing, it's pointless, it's best to just keep the pain and injuries to yourself. Yes insomnia is prevalent in those with my condition.
So funny I just came to this topic to post about my toddler, interesting to read this thread. Will look at the Beighton score, subluxation sounds to be better than dislocation, my cat has luxating patellas so I kind of know what you mean!
Oh heck Littlemiss and howto - I'm a get on with it parent and DS is pretty stoic, he also suffers from insomnia. Thanks for this thread and your contributions, at least I know that taking him to the GP is worth doing and I'm not fussing over nothing.