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esophagogastric dissociation

(4 Posts)
rosielea Tue 27-Oct-15 20:59:01

Hi, has anyone's child had this? It's looking likely for my daughter and just interested in others experiences. Thanks

dratsea Wed 28-Oct-15 06:06:13

<bumps and waves> A posh term for hiatus hernia? I have a hiatus hernia but I am retired, overweight, male and drive on the left so probably not a role model for dd. Perhaps someone in US of A who has had this diagnosis on their child properly explained to them can translate and explain this medical gobbledygook for rosielea?

rosielea Wed 28-Oct-15 08:45:32

Thanks dratsea, I'm very much in the UK, just too much looking at research papers from both sides of the pond.
It's a type of surgery to stop reflux, It's used much less than fundoplications but in someone with severe Dystonia (like my DD) it's likely the more effective option.
I just can't seem to find anyone with real life experience of it to chat with!

dratsea Wed 28-Oct-15 19:55:43

The paediatric surgery at King's is excellent, and they have the interest in neurology, both adult and paediatric, if that is any help in narrowing your search.

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