I am wondering if anyone has a similar problem...
My LO, 10 weeks tomorrow was diagnosed with GORD acid reflux when she was 5 1/2 weeks old. We ended up in the hospital after several severe chocking incidents. Which mainly happened in the middle of the night, say 1 1/2 - 2hours after FF. Luckily we heard her, even though it happens quite silently. She goes bright red, vigorously shakes her head side to side, wide 'help me' eyes, and clearly struggling to breathe. Once picked up and held up right she would tend to calm down again. By the time we are at the hospital, GP's etc she would be sleeping soundly. Along side this she would be really grunty, irritable in her crib, back arching etc.
We ended up getting a referral to peds unit and she actually had one of these chocking incidents while there so we were kept in overnight for obs. They decided it was GORD reflux and put us on a strict feeding plan as apparently its really important not to over feed her. So 60ml of formula every 3 hours (at the time she only weighed about 6lbs 8oz). She was also put on ranitidine and domperidone.
We ended up back there after a week as she still seemed to be really suffering with reflux symptoms, altho not as severe. She was then put on domperidone and omprezole. After a week of being on this she was then suffering really badly with trapped wind, not having many dirty nappies, clearly in a lot of pain in her stomach. So again back to the hospital and kept in overnight for obs. Left with increase dose of the omprezole.
Last few weeks had been going pretty well, a few unsettled spells (altho we suspected colic and started infacol which seemed to help with this) but nothing major, and most importantly no full chocking incidents only a couple of very mild moments. When she got weighed a week ago at 9 weeks she had dipped on the weight chart (then 7lbs4), previously she was climbing steadily along the bottom line (myself and my husband both quite petite and she was born at 37 weeks small so there had been no weight concerns). Same day we had the LO’s review at hospital so discussed the weight dip and ped agreed to slowly up her milk volume so we changed it for 60ml to 75ml over 7 feeds in a day. she always finishes her bottle.
In the last week the GORD symptoms are coming back!! Back arching, really unsettled, upset and grunty in her crib at night, hiccups, and several mild episodes. Got her weighed yesterday and shes 7lbs 6. When we called the hospital to ask if her meds should be increased as her milk is and her weight slightly gone up since our last visit (even tho not as much as we’d have liked), they informed us that she hasn’t gained enough weight to justify milk increase or meds….. we are very confused and surely her weight won’t go up if she is staying constantly on the same amount of milk?! Spoken to my lovely HV and shes said to follow peds advice but that she will need to take a little more milk to help with her weight, but that we may need to take it very very slowly. Decided to do alternate feeds so one at 60ml, then 70ml, then back to 60ml etc. We started this yesterday and she wasn’t too bad in the night until 5am this morning when she had a full blown chocking incident, really bad one. Its so upsetting to see her suffer like this.
We have now decided to today go back fully to the 60ml to let her hopefully feel so relief, then starting tomorrow morning try 65ml at each feed. Any more incidents we will need to get back to the hospital and push for more help again.
Has anyone else’s LO suffered with GORD and had problems attempting to up their milk intake and weight?? Feels like we are going backwards at the moment! Just want her to be well and healthy in all aspects. Sorry for the long post, lots of info to put down.
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Children's health
GORD reflux - difficulting increasing milk intake
30 replies
ladybird182 · 21/07/2015 07:45
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