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Ehlers Danlos Type 3

(1 Post)
Pippa12 Tue 07-Jul-15 15:50:23

Hi,

My 3 year old DD had EDS type 3. She's doing great now, despite all joints being grossly hyper mobile she's up walking/jumping/running of a fashion and the gross motor skill gap between her peers and herself is rapidly closing.

Today we have been discharged from genetics and put under the care of the paediatric rheumatologist. I wondered if anyone had made this transition and what to expect from them?

Does anybody have any experience with EDS? How has it affected your DC long term?

Also, have any of you gone on to have further children? Do they have EDS and to which degree?

Many thanks x

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