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Child taking DesmoMelt but still wetting the bed

(6 Posts)
Fresh01 Wed 03-Dec-14 21:17:50

DD (7) has recently started on DesmoMelt as she is a bed wetter. The doctor has doubled the dose but she is still wetting the bed. I don't want her taking tablets if they aren't helping. Anyone been in this situation before?

I'm not keen on her taking the tablets for no benefit.

Bessiebigpants Wed 03-Dec-14 21:27:56

Has she been properly assessed by a specialist bladder and bowel nurse?Im in no way dismissing your gp but there are lots of assessments that need to be completed before starting medications.Input output charting stool charts etc.They usually perform bladder scans to assess capacity of bladder because if the bladder is too small no amount of medication is going to stop bed wetting.Back to basics is she drinking at the very least 6 big drinks of clear fluid a day?
Your school nurse can refer you for specialist services if that's what you need.

Fresh01 Wed 03-Dec-14 22:06:26

She has seen a paediatrician (referred by GP) and it was he who started the Desmomelts. She has a few bladder/bowel things going on as well as bed wetting. She had an X-ray and ultrasound of her bladder but no other tests. Bladder size ok but didn't completely empty.

I would say a least 5 drinks a day. She only drinks water or milk. One of the few kids that doesn't like fizzy drinks.

We had a separate referral to the eurisis clinic for over a year but when chase they said they would even consider an appointment till after she was 7. Hence seeing a paediatrician in the meantime.

Muchtoomuchtodo Wed 03-Dec-14 22:29:46

Our ds1 was still a bed wetter at 7.

He was seen at eneuresis clinic. They prescribed desmopressin (in every possible form) but he wouldn't take it.

We pushed daytime fluids+++ (advice for the clinic was to tell school that he had a mild kidney problem so that they really encouraged water during the day), he is a milk or water drinker too. Other than that we did nothing different and after a couple of months he became dry at night and has been for the last 2 years.

Lemonsole Thu 04-Dec-14 12:08:31

Hi, Fresh
There's a long-running thread over on Behaviour and Development with lots of stories, advice and information sharing on our DCs who still aren't dry at night after 7 yrs.

It's called "2nd dry night for DS, 7, is this it?" A - or similar, started by Whereisegg. See you over there. smile

Fresh01 Thu 04-Dec-14 15:11:30

Thanks for that Lemonsole. I thought there would be others in the same boat somewhere but could never find them! Will wander over : )

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