This school year started badly-DS had what seemed to be an eye infection in his right eye. It was treated with eye drops that seemed to dry his eyes up at night-he kept getting up to soak them open. Later on, we thought it had re-occurred, but another GP in the practice pointed out he had eczema round his eye (as he did on his arm) and suggested the rubbing was making his eye red. Putting cream on the eczema seemed to work.
Along with this, the urticaria which he had suffered earlier in the summer seemed to have got worse-every time he got hot or sweated. It subsided after a while, but sometimes involved his eyes. He now has Fexofenadine daily. Also has mild asthma, worse with a cold, although he hasn't had any noticeable viruses in the last few months, beyond the possible eye thing.
He is suffering both physical and mental, although still insists on going to the gym when he can. His college attendance is right down. They are quite understanding. (He got top AS grades and they like him.)
I am quite aware we may have to give college a miss sooner or later for this year as he is really just going to occasional lessons. He does seem to want to be studying and getting better, and is quite wistful about university offers and invites he can't do much about.
I am sure I'm not the first parent to feel a bit lost. He has had three lots of blood tests-full counts of cells, checks on all organs, diabetes, thyroid, liver, kidneys, (creatine) checks for mono, the allergy ones because of the urticarial and nothing abnormal. He says he is sick of having tests, waiting a week and then having to ring up. When I have checked on sites about CFS/ME he seems to have had all the blood tests recommended for excluding other stuff.
I know that depression can also be blamed, but he was quite happy until he started getting low physically, and says he is down because he can't get on with his life.
We live near Cambridge, so any local guidance would also be much appreciated.
Best to all parents living with illness.
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Children's health
Possible CFS: Advice needed for fatigued 18 year old DS
10 replies
Seoulsister · 28/11/2014 17:20
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