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Any mums of Babies or children with Laringomacia??

(7 Posts)
Pramaholicmum Sat 08-Nov-14 00:03:25

My 11m DS is waiting to see a specialist in ENT. He has some problems with left sided palsy due to birth trauma and we were pulled aside by a doctor who was worried about his breathing, to cut a long story short they said it was Laringomalacia. I can't seem to find anyone who's child has got this. Just wondering if there is anyone on here who can put my mind at rest. confused

FelixTitling Sat 08-Nov-14 00:08:16

I googled this because it rang a bell. My sister had it, but it was referred to as 'Stridor'. She grew out of it by the time she was a toddler. No treatment was required, only monitoring.

Pramaholicmum Sat 08-Nov-14 00:12:46

Ahh that's great to hear, unfortunately my son has a very severe form and my gp was shocked today when I showed her my video of him struggling to breathe. He has a massive recession due to struggling. I've been told there is different treatments but not met anyone yet who has gone through the severe type.

mkunga100 Sat 08-Nov-14 00:36:42

My daughter had surgery at 10 weeks old due to laryngomalacia. It was a straightforward op and she recovered really quickly and spent less than 24 hours in hospital. My 9 week old son also now has laryngo but no need for surgery as he has had sleep studies done and his oxygen levels are fine despite his alarming breathing.

You'll find that people do panic when they see a baby who appears to be struggling with breathing. Even the paeds in our local hospital were really uncomfortable with my kids breathing but when they were referred to the specialist at the children's hospital he was much more relaxed about it as he'd seen it all before.

FelixTitling Sat 08-Nov-14 08:28:15

Ah, sorry to hear that pram.

Hopefully it's something they can sort it easily as in mgunka's experience.

Good luck.

NoMarymary Sun 09-Nov-14 21:44:40

A friends little one has this and the only advice I can offer is that if there is any hint of a cough or cold get medical attention sooner rather than later as the airways can narrow down very fast.

RNW Tue 11-Nov-14 20:47:22

My son has bronchomalacia (floppy bronchus),but after 2 years has much improved....growth seems to be the most helpful thing in these cases. He had a tracheostomy for a few months, unrelated to the bronchomalacia, but I knew a number of children who had temporary tracheostomies/reconstruction for this problem.
My friend's child has a severe
Floppy larynx , 18 months on she still has significant stridor but is constantly monitored by GOSH and they aren't too concerned.
As mentioned, it's very important to seek help if a cold develops as babies with these problems can go downhill very quickly.
Please take comfort from the thought that this problem massively improves with growth, and there is a lot that the drs can do to improve things.

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