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Reflux

(9 Posts)
Tracyj29 Sun 26-Oct-14 22:55:19

Hi, we have a 5 month old diagnosed with reflux and cows milk allergy. He has taken gaviscon at his bedtime feed since he was 6wks and has very recently been prescribed a thickener for his milk, although the gp has yet to actually prescribe it (hasn't received report from pead yet). We have started gentle non-dairy weaning, baby rice, fruit and veg purées, on peads recommendation as he is a big baby (91st centile). He has a prescribed hypoallergenic formula, neocate lcp, as he was also tongue tied and struggled to feed from me. I expressed and bottle fed for first 6 weeks then tried various formulas until diagnoses above. Poor little mite hasn't had the best start! The main issue now that we have most of his symptoms under control during the day and he is more cheerful in himself is that he sleeps terribly at night. He naps 3/4 times a day for 20-45 mins. Overnight he goes to bed sleepy but awake and falls asleep with a dummy, then typically wakes at 12ish, then hourly or at worst half hourly until dawn. He isn't hungry as he hasn't changed this since weaning and I've tried a bottle, it makes no difference. It's very hard to settle him back. He often does a very high pitched crying which is very hard to tolerate and sounds like a pain cry. We've elevated the cot head with books under the legs. I don't know what else to try, other than wait for him to grow out of it, as my firstborn never had anything like this! Any advice would be very appreciated as we are both so tired. Ty x

JiltedJohnsJulie Mon 27-Oct-14 07:48:36

My DS was like this and it turned out to be tongue tie. It might be worth getting it checked again as it can reattach, also, posterior tt can be easily missed.

How often are you offering solids? Could it be that his digestive system is just too immature to handle solids? I'd offer them at most once a day, preferably at breakfast so he has a chance of settling by bedtime. Have you tried stopping the solids for a couple of days and seeing if his sleep improves? Weaning isn't a linear process so its fine to do this smile

It might also be worth asking on the allergies board about changing his formula. I know that formula doesn't suit all babies but I'm not very clued up on the options available.

And lastly, I'm a bit surprised he's on Gaviscon, there are far better meds available for reflux, but again I'm not very clued up in them. Hopefully someone who knows more will be along soon...smile

CurlsLDN Mon 27-Oct-14 07:58:13

Are you sure the night waking are due to the reflux? My ds is nearly 6 months (and also has reflux) he is currently in leap 5 (get the wonder weeks app if you don't already have it, it's brilliant and explains exactly when and why they go through rough patches) and has also just had the 4 month sleep regression, which for us came at five months and sounds just as you describe.
I'm also part of an online antenatal group who's babies were all born in April/may and everyone has experienced the same.
If it could be that, be reassured it gets better all of a sudden. Ds slept 7pm - 7.30am last night!
Sounds like you've had a terrible time with the reflux, but you've also been brilliant pushing for all the medical help

Theorientcalf Mon 27-Oct-14 11:22:22

We found gaviscon the worst for reflux as it just made DS constipated. Why do you need thickener as well as this is essentially what gaviscon does, it thickens the milk so it doesn't come back. It won't do anything for stomach acid like ranitidine and omeprazole which can cause pain and discomfort, especially when lying down.

Tracyj29 Mon 27-Oct-14 22:03:34

Thank you all! We are meant to stop the gaviscon when we get the thickener and try that instead, as the gaviscon does make him constipated and upset. That's why we only give it to him in his last two feeds of the day. We tried stopping it completely a while ago but he was worse and also would wake us up making an awful choking/gurgling noise where he was being sick while laying down so I'm too nervous to not give it to him before we get the thickener. The pead says we are to try the thickener and see if that helps before they go down the drugs route as they only give drugs to babies as a last resort.

He has been bad overnight before we started weaning, we thought that would help as he could be hungry but it hasn't made him any worse or better. We are taking the weaning really slowly, over two weeks he is now on two meals a day of bland veg purées and fruit mixed with baby rice, so nothing too acidic.

I'm pretty sure his tongue is ok, I had a look today but its looks ok and he can stick it out.

Last night he only woke at 1.30, 4 and 5 and I did manage to get him back to sleep until 6.30 so that was an improvement, I'm hoping it is a 5 month sleep thing as I vaguely remember our first son having a little bill then. I will look that up, thank you!

Tracyj29 Mon 27-Oct-14 22:09:05

Just downloaded the wonder weeks thank you!

Also I will keep solids very bland and gentle for even longer just to be on safe side, thanks for advice. On the plus side, the solids haven't upset his tummy, that side of things is fine and normal.

nocoolnamesleft Tue 28-Oct-14 19:28:24

Often starting solids is the turning point, so fingers crossed! And getting completely rid of dairy may well help a lot. But if you think he's still in pain despite those changes, I absolutely agree with the person above who found omeprazole way better than gaviscon...

JiltedJohnsJulie Thu 30-Oct-14 10:02:25

Did you read the link on tongue tie? I'm pretty sure being able to stick his tongue out is pretty normal with tt babies too smile

I'd drop the solids down to once a day. There's no rush. The nhs don't recommend moving to 3 meals a day until they are between 8 and 9 months.

Could you go back to the Paed? If you are thinking of excluding food groups and the gaviscon isn't working you really do need the advice of a Paed. Excluding food groups is something that you really shouldn't do without the advice and support of his HCP smile

concernedaboutheboy Thu 30-Oct-14 14:27:14

Just to throw something out there, it could be unrelated to reflux. It might be because he is losing his dummy and can't find it in the night. You could try putting many many many dummies around the bed (!) and teaching him how to replace it. That might help matters.

What formula is he drinking now?

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