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pead referral 3yo I need hand holding

(9 Posts)
OnlyWantsOne Tue 08-Jul-14 17:47:49

This may be long. Sorry.

dd2 had her mmr at age 2 - 10 days later and with no other symptoms she woke in the night and complained she couldn't walk (as in, walk to our bed for a cuddle) I went and got her. In the morning she literally couldn't weight bare at all. Couldn't stand and was in terrible pain. Even moving her legs was resulting in screaming. Couldn't bend her hips to put in car etc.

After many days of temp spikes and shuffling back and forth from a&e and GP she was finally admitted for IV antibiotics. 3 days later they did a chest xray and discovered double pneumonia.

Roll on from that probably 18 months have passed.

She gets a reoccurring limp / pain in leg then comes down with a bug /virus with high temp. Throat infection / ear infection for example. This has happened probably 6 times in that time. Resulting in needing antibiotics at home to clear infection and leg pain doesn't get mentioned so it's clearly going too.

referred to pead beginning June but haven't seen them yet

Random temp spikes etc more leg pain

Last night she collapsed couldn't walk was in terrible pain I took her to GP. temp of 38 told to just wait til we see the paediatric people. Ears / throat / chest etc all clear. Temp spiked to 40 when we got home and I managed to bribe her to take nurofen.

I'm so scared it's some thing terrible sad

I lay awake and cry about her most nights I am so scared. Everyone seems very blasé but she couldn't stand up she was in so much pain. Tbh I'm terrified.

HPparent Tue 08-Jul-14 17:53:51

To be honest if it was something terrible I think it would have revealed itself by now. I believe I got Stills Disease which was also called juvenile chronic arthritis from the rubella vaccine I had at age 16. That has a spiking temperature and joint pains. The main treatment is pain relief and anti inflammatory drugs. It is not life threatening.

HPparent Tue 08-Jul-14 17:59:27

Not saying she has it; there must be lots of conditions that cause those symptoms. Just mean that it is very unlikely to be something really awful.

OnlyWantsOne Tue 08-Jul-14 18:05:42

Thank you

I know, I'm just getting worked up about it because last night I became aware how poorly she gets so quickly.

Maybe it's just how she manifests herself when fighting off a virus.

She was meant to have an MRI when we were in hospital but there was a back log over the bank holiday etc and it didn't happen

JammyGeorge Tue 08-Jul-14 18:11:00

No idea what's going on with her but a massive virtual hug from me, it must be very worrying.

Do you know how long the paeds referral will take? Do you have an appointment?

If I was as worried as you are and I had an appointment booked I'd ring the consultants secretary and explain it's happened again since the referral was done and see if she could be squeezed in somewhere sooner (disclaimer no idea if this is possible).

It sounds rather odd almost like a recurring virus that's bringing joint pain with it. A friend of mines daughter kept getting repeated v v high temps with no symptoms went on for months got a referral in then they just stopped.

HPparent Tue 08-Jul-14 18:11:24

Thinking about it, my elder daughter used to get random fevers but our GP advised us against investigations as she was clearly well in between. She also got terrible pains in her legs especially. The GP thought it was growing pains and she herself had suffered with them, though I had thought that was a myth. I was always very vigilant over what had happened to me. Just keep a note of when and how long the bouts occur.

OnlyWantsOne Tue 08-Jul-14 18:15:10

The time before last night must have been 6 weeks ago, we were at a friends for dinner and she was playing football in the garden. All the adults noticed she was limping and I said I bet she comes down with some thing. Next day temp up to 40 and really sleepy. Throat infection.

306235388 Wed 09-Jul-14 00:02:16

I know this isn't the same exactly but ds had pneumonia aged just 4, for the next 18 months he was ill almost every week and even a cold meant a fever of 40 degrees, it completely changed him, his physical and academic development was stunted by it and its only now, at 7 that hrs catching up. It really does knock them for six for a very long time. He would complain of sore legs for a long time on and off.

Hope you get some answers soon

OnlyWantsOne Wed 09-Jul-14 13:16:31

Oh goodness the poor love. In a way it's good to hear that though? Maybe it's just flawed her immune system. I shall await the pead referral and try to stay calmer about it.

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