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List of symptoms...what do you think?

(11 Posts)
HHH3 Wed 11-Jun-14 19:24:30

DS2 is 18 months. He snores, has sleep apnoea and tracheal tug. His adenoids and tonsils are big and he needs them out ASAP. Because he's so young it needs to be done at a hospital with a paediatric icu so he's been referred and we're just waiting to hear from them.

There are some other things going on though and I wondered if they are connected or even if I should worry about them at all...

He's recently lost weight. HV asked me to bring him back in 2 weeks which I did last week and he'd gained weight but only 3oz and was still slipping down the centiles. He's now around the 9th centile despite being on the 91st when he was born and being on the 50% for months. He doesn't seem to have much of an appetite and also prefers to bf rather than eat.

Apart from when he had constipation he's never had a solid poo. It's always mushy and quite often smells pretty vile.

Recently he's started wanting water in the night (this started before the weather got warmer). I'm not sure if he's waking cos he's thirsty or using the cup to suck on as a way of getting back to sleep. But he's getting through about a cup of water a night.

Lastly, and I'm pretty sure this isn't related but I'll put it in because it worries me. He doesn't talk. Not a single word and he doesn't attempt to either. He makes a wide range of noises but no words and never a consistent sound for the same thing iyswim. We do baby signing so with signs and pointing he makes himself understood and he clearly understands what's said to him.

Am I being a paranoid mum? Clearly he has a problem with his tonsils and adenoids but am I overthinking the rest?

LadySybilLikesCake Wed 11-Jun-14 20:51:04

You could do with popping him to the GP and asking for a peadiatrician to check him over. Foul smelling poo can be caused by lots of things but it sounds as though he's not digesting his food properly. Does he get a lot of chest infections?

helensburgh Wed 11-Jun-14 20:55:53

Hi just my thoughts. Guessing the tonsils may make eating uncomfortable for him.

I really hope everything improves after he gets the out.

HHH3 Wed 11-Jun-14 20:57:04

No chest infections but lots of colds although that's to be expected really. But when he gets colds he seem to get them really badly and they go on for ages.

I'm wondering if I should wait and see how he is once he's had the op and then take him back to the GP if things don't improve.

HHH3 Wed 11-Jun-14 20:57:47

Yes, I'm hoping his eating, and therefore his weight, are because of his tonsils rather than anything else.

Pobblewhohasnotoes Wed 11-Jun-14 22:32:46

Has anyone looked in his ears? Large adenoids and tonsils can cause hearing (fluid build up) and speech problems. Plus if they aren't sleeping properly at might it can make them really tired and find it difficult to concentrate.

HHH3 Thu 12-Jun-14 06:43:34

His hearing seems to be fine - it's probably the one thing I'm not worried about!

His sleep is awful - it's so disturbed and I'm sure he's really tired a lot of the time. Although he doesn't necessarily wake up every night he's certainly not getting restful sleep. His oxygen levels also drop really - he had a sleep study and his levels drop as low as 73% hmm

mawbroon Thu 12-Jun-14 14:42:36

I would suggest that you have him checked out by a dentist for tongue tie and oral development.

You need a dentist who has taken a specialist interest in this area.

Many of the things you have mentioned can be caused by tongue tie and/or high palate.

Been there, got the t shirt with DS1.

Have a look at Brian Palmer's website in particular, the section on sleep apnoea.

Warning, some of it is pretty graphic.

HHH3 Thu 12-Jun-14 18:19:55

That's interesting mawbroom as, although he doesn't have tt, he does have lip tie and think he has a high palate too.

Will have a read of the link later. How do I find a dentist who would know about these things?

mawbroon Thu 12-Jun-14 18:29:17

Lip tie almost always goes hand in hand with tongue tie, usually a posterior tie. These are the ties that are hard to spot. Most HCPs would not be able to identify one unless they have taken an interest in ties.

A high palate is also an indicator of posterior tongue tie. The palate is smoothed by the swallowing action in the womb and beyond. If the tongue cannot make the correct movements to smooth the palate, the baby can be left with a high narrow arch.

Are you anywhere near London? I would recommend you go and see Malcolm Levinkind in North Finchley.

HHH3 Thu 12-Jun-14 18:30:33

Ok - that makes sense. I'm not far from London so will look into him.


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