Hi just wanted to raise abit of awareness about Pyloric Stenosis . At 5 weeks My DS Started bringing full feeds back up all the time (that much he chocked once) he also lost 9oz in a week which is drastic at that age apparently . After many tears and explaining myself and pleading with doctors we were told to take him to A and E were after many tests and examinations he was finally diagnosed with Pyloric Stenosis (after being told it was reflux) his gas levels were so high if left any longer it would have been to late and could have been fatal ! He was in hospital for 5 days and had an operation to loosen the muscles around the tube leading too his bowels as this was what was causing the problem. It sometimes goes unseen a the symptoms r very much like reflux so i just wanted to let people know that if they see these signs n symptoms please get DC assessed even if its nothing . Its common in first born boys hod knows what would have happened if nobody had listened to me x
Ds was 3 weeks old when he had his op at Leicester Royal, brill hospital. We were not believed till a doctor checking another child witnessed him being sick, we were about to be sent home. we were took to have his bloods done and canula fitted which was horrible We were at northampton general before being transferred. It was a scary time watching my newborn going for surgery but now he likes seeing his scar and hearing the story. As soon as there is a sickness bout which is prolonged with him the docs end up sending us a and e thinking its to do with ps. Does anyone find that their child has a weakened immune system from it, ds is always getting illnesses and has a lot of chest infections.
I haven't noticed him getting any more illnesses than DS1, but I do wonder whether it affects him Monster. He does have some foods that seem to go straight through him. (TMI)
We had Ds2 diagnosed at the local hospital but they didn't do the PS Op there so he got transferred to a hospital that did. Unfortunately they had to do all the tests again and wouldn't take the original hospital's word for it.
They couldn't get a canula into him and he was just screaming and screaming. DH and I had to leave we were so upset. They stuck it in his foot in the end. He hadn't had a feed for about 2 days by this point.
We were told he couldn't feed him for a day and half, was awful at night. We have a photo of him drinking his first filling bottle That must of been horrendous to witness sparkling, ds was lucky really, it went in first time.
DS1 was diagnosed quite late - he was 8 weeks old. He wasn't a particularly sicky baby when he was first born but it got gradually worse - me and DH hated feeding him as we were always on edge waiting for the milk to come back We literally covered ourselves and sofa in towels and always had a plastic bowl to hand - I do feel sad that what should have been really special bonding times with feeding and cuddling were extremely stressful.
He was misdiagnosed by docs twice - once with a vomiting bug and once with reflux. However, I don't totally blame the docs as both times they asked me if the vomiting was projectile and it wasn't true projectile vomiting so I always said no. It came out with force but we could always catch it in a bowl My mum commented she had never seen a baby vomit that way before and he was sick all over my sister and she commented that an awful lot of milk came back up considering it had been 2 hours since he had been fed - this started alarm bells.
Crunch came when he was sick in the early hours and there were specks of blood - took him straight to A&E, he was admitted, nurse witnessed him vomiting and was fairly sure it was PS and then he had some tests which confirmed it with his blood levels.
He had his op, very straightforward, he has a scar that only we would notice but like a previous poster said, he loves hearing about it now he is 6.
Sending him for his op was horrific - worst moment of my life
No longstanding health issues - very healthy, rarely has time off school. Everytime he gets a cold, it goes to his chest and develops into a cough which he can't control and ends up vomiting - no idea whether this is related or he would have been prone to this anyway.
Whenever I see a thread about a sicky baby, I always think 'oh no' aswell. I really wish I had posted on here about DS1 and hopefully someone would have mentioned PS as I knew nothing about it - I am fairly sure a quick google of the symptoms would have rung alarm bells and we could have got a diagnosis earlier.
No 1 would beleive us either and health visitor told me to give him more milk which was making it worse . I also lost count of tests he had he didn't mind cannula but when they put an NG tube in to aspirate he screamed me n DP were in tears . I wouldnt wish PS on anyone as its frightening and the starving them is the worst ive never felt so helpless . Will be keeping eye out for chest problems thank you x
Rachi so glad your DS is ok now. Trust me, the horror of it all does fade in time (me and DH often joke about it now) - just be grateful it was caught in time and try not to think about what could have been
Was a bit nervous with DS2 but he is now 4 and I can probably count on one hand the number of times he has been sick I think me and DH definitely did our fair share of mopping up vomit with DS1!
Another one here. Poor little DS started projectile vomiting at 5 weeks. I found out about Pyloric Stenosis on the internet and thought it was that but it took loads of tests and being sent home 2-3 times before they even did a scan for it. Poor boy had to have a lumbur punture test and have 6 nurses holding him down beforehand.
Was so horrible to go through at the time, not being able to feed him for 8 days and having to pump breastmilk the whole time.
Thank goodness for modern medicine!
We were at the Royal in Leicester as well - they spicialise in it there apparently.
We were told same ceebeegeebies we were in the childrens hospital and the registrar told us it was that common he had dealt with 5 cases the week before! Personally myself i think there should be more awareness of it and information given as it is so common .
Ceebeegeebies we were told to give him infacol 1st then gaviscon then change his milks 3 or 4 times the poor love had no idea wat was going on it shud b checked out the moment its mentioned i never took him to A and E because we were fobbed off with reflux x