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Mumsnetters aren't necessarily qualified to help if your child is unwell. If you have any serious medical concerns, we would urge you to consult your GP.

The doctor says lots of people are getting/being 'Post viral' this winter; are they?

(129 Posts)
KatyMac Sat 19-Jan-13 21:04:53

DD hasn't 'picked up' after sinusitis & the dr said lots of people were struggling this way this winter

Are other people finding the same?

rockinhippy Fri 15-Feb-13 12:57:56

aruiane I now now a bit about EDS, so kniw they are similar/same conditions & same here & what keeps going round in my head is what the specialist that diagnosed my DD said - JHMS is closely linked to Fibromyalgia - even the NHS blurb describes the over sensitivity to pain etc & I know too well that with FM if I over do things & push through being ill to get things done etc, I get very ill indeed & it IS very much like flu, known as fibro flu - but I don't think to ask as the time & asking our GP & school nurse has been a waste of time - I do have a referral myself, so I am hopin to get an answer then, because I see so much of the same in DD that I deal with myself, though they now think my M.E. diagnosis is more likely JHMS too, hence the Rheumy referral - if I get an answer I will post it

Katy a lot if that sounds so familiar to me - it took 5 years for me to finally get a Rheumy referral for my DD, though my initial worry was that she had FM too - I was patted on the head & told not to transfer my own health issues onto herangry it took my getting really stroppy & coping notes from GP appointments & submitting it back in writing to finally be taken seriously & I was right, though I only learnt about JHMS due to a friend who has it on Facebook sending me a link that joined the dots of all my DDs symptoms into one condition - including her diagnosed IBS - DH & I are both hyper mobile - ie extra flexible, at least I was, so to us DDs bendiness was all just normal, we had no idea it could be a medical condition.

I would recommend you look into it - joint hypermobility syndrome - how you describe your DD mood sounds very familiar too & is also a symptom & I remember you posting about her dance, the flexibility of JHMS/EDS DCs gives them an edge with things like dance, gymnastics & guitar & like I said above, they now think it is my real diagnosis too - not M.E

rockinhippy Fri 15-Feb-13 12:59:49

Sorry should have said - it's a hereditary condition

KatyMac Fri 15-Feb-13 17:00:38

Oh I don't know - it's all a bit much atm

rockinhippy Sat 16-Feb-13 13:57:01

sad sorry Katy - I know how you feel & I absolutely hated that DD actually did have something, even though I knew it, I would loved to have been wrong, but I also realise now that having a diagnosis for her, means that she gets the physio & advice that I never had, so she won't do all the wrong things in life that I did, which ended up making things so much worse - I lived in heels for example - a big no no for JHMS, lots more things that she's learning about now - as well as the bonus of guitar lessons as we also learnt that she might be good at it - turns out it right, she is a natural smile

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