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Wheezing into 2013 - Support thread for parents of asthmatics

(994 Posts)
Sirzy Wed 26-Dec-12 14:19:15

As the old thread is filling up I thought I would get a new one started!

This thread is for anyone with a child with asthma, or asthma type symptoms. Between us we have to much experience of inhalers, nebulisers, steroids, sats and all things asthma!

laracroft2001 Tue 18-Jun-13 18:32:00

Hi Lolli and sirzy. Sorry to hear the little ones haven't been too good. Any Improvement today?

We have been ok.. A couple of wheezy attacks... Not used the inhalers but have tried anti histamine which has helped. Seems to be a link with strawberries?!? Not been able to get follow up appointment moved forward.

Fingers crossed for a good night for everyone today

laracroft2001 Tue 18-Jun-13 21:16:53

Spoke a bit too soon...really bad coughing tonight. hmm

We have just literally got back from holiday today, so perhaps a bit of aeroplane air/weather change ?!?

Sirzy Tue 18-Jun-13 21:21:44

Probably linked to that ye, hope he feels better soon and you had a nice holiday.

DS is quite settled so far tonight

Sirzy Wed 26-Jun-13 16:37:13

Quick bump. I hope everyone is well at the moment

Rachelbloy Wed 26-Jun-13 21:41:45

Thank you for this link, my DD has been getting progressively worse over the last clue of weeks, she constantly wheezes, the moment I lay her down at night she coughs, last nights she vomited clear phlegm (sorry, gross I know) I took her to the docs this morning and was made to feel like a time waster and I admitted she coughs that much that I can no longer tell the difference between poorly and asthmatic cough, feel very frustrated and helpless

Sirzy Wed 26-Jun-13 21:44:25

What medication is she currently on?

Rachelbloy Wed 26-Jun-13 23:04:25

She has ventolin and clenil (50mg clenil) she's had quite a few doses of steroids over the last year when she's had chest infections, I give her 2 puffs of ventolin morning noon and night and 2 puffs clenil morning and night as recommended by doc and if I feel she needs her ventolin in between

Sirzy Thu 27-Jun-13 09:58:58

Hopefully when you see the consultant they can help. They may add montelukast or up the clenil. Hope its under control soon

lollipoppi Sun 21-Jul-13 20:05:06

How's everyone doing??

DS is in the verge again, started Friday and got him a last min appt with GP for some pred, he has has his last dose today but not showing much improvement.
Coping ok on inhalers but needing a good 6/8 puffs 4 hourly
Will be on night watch tonight hmm

Sirzy Sun 21-Jul-13 20:54:40

Hope he improves soon Lolli.

DS is struggling a bit with the heat, back at his consultant this week so hoping we manage to get an answer to bring him under control.

lollipoppi Mon 22-Jul-13 10:27:30

He is a little better this morning, his breathing seems to be calmer.

Good luck at the consultants, I'm still waiting for his appt to come through as it was brought forward since his last admission

laracroft2001 Tue 23-Jul-13 22:17:55

Hi all

Sorry not updated for a while. Got DS consultant appointment on 1st August.

Not used the inhalers in a good fee months... Seem to have made a huge ddifference cutting out strawberries and honey... Allergies? Who knows. Anti histamine seems to help, but of course could be coincidence

Not read through all thread yet, but hope the hot humid weather isn't causing too many problems .

Sirzy Thu 25-Jul-13 10:27:07

That's good Lara!

DS has had his antihistamine dose doubled so now he is on the maximum doses he can have of everything. Got to go back in 3 months

lollipoppi Mon 29-Jul-13 14:30:42

Hi all

Just got back from the consultants, all went well and she has agreed to drop him off the montelukast and review again in 3 months, if all goes well we can maybe reduce the dose of seretide too!

How is everybody?

Sirzy Mon 29-Jul-13 14:36:49

That's fantastic Lolli! Nice to see some positive news fingers crossed you can carry on reducing things!

lollipoppi Tue 30-Jul-13 15:47:32

Need advise!
Just Bumped into a lady I know on the park, her daughter has asthma and goes to ds1s nursery.
I was telling her about DS appt yday and mentioned that hopefully in another 3 months we can drop the seretide down from 50mg to 25mg
She was shocked and said the her DD is on 250mg, she even double checked it when she got home and text me to confirm
To my knowledge this is WAY beyond the maximum dose for her age (she is almost 2 shock)
I even found this statement on a website : The maximum licensed dose of fluticasone propionate delivered by Seretide inhaler in children is 100 microgram twice daily.

Should I text her back and let her know? I really don't want to worry her but I know her next appt it not until the end of October! Her current consultant is not a specialist in the field he is more gastro and her next appt is with an asthma consultant (same one as DS) WWYD?

Sirzy Tue 30-Jul-13 16:14:11

Is it defiently seretide she is on and not the brown inhaler?

Sirzy Tue 30-Jul-13 16:15:13

DS was sent home from nursery today having as asthma attack. They seem to have caught it quickly but he is still very lethargic and struggling a bit. Hoping he perks up quickly!

lollipoppi Tue 30-Jul-13 16:33:07

No 100% seretide purple inhaler!

Aw no poor chap, hope he picks up soon!

Sirzy Tue 30-Jul-13 16:40:25

I would say something to her then, that size dose can't be good for her. DS is on 100mg a day and they have said that can't go any higher, they aren't happy having him on that much but there is no choice.

lollipoppi Tue 30-Jul-13 17:12:50

I've got in touch, she has left a msg for the GP and resp nurse to call her back

Sirzy Tue 30-Jul-13 17:13:43

Good, hopefully they can sort it!

lollipoppi Wed 31-Jul-13 08:06:47

How was DS through the night Sirzy?

Sirzy Wed 31-Jul-13 08:10:45

Coughing quite a bit but not too bad thanks

lollipoppi Wed 31-Jul-13 09:21:21

Fingers crossed he is in the mend

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