Am in Asia and about to sleep but neurologist says dd who is in hospital (10 months) has delayed brain development. This is in conjunction with failure to thrive and a flatlining curve. They are looking at metabolic and genetic disorders and I am beside myself. Couldn't find Special Needs on my stupid phone.
Hand holds and hugs all round love, you will soon have some answers and you can work from there, you will feel so much better when you know what's going on. Sending positive thoughts to you and your DD x
They just asked me if I was sure dd has 600ml a day and maybe they will do an NG tube to check. Almost kicked the doctor. I devote my life to feeding this tiny minx. Gah. Will ask for an observer in the corner of the room perhaps.
NG will not happen on my watch as she has severe oral aversions. Also they would only give 600ml through tube!
hand here too- I'm in NZ so am about for a few more hours yet. I hope you are getting some rest. It's awful when the doc's question you, but they are trying to rule things out. Good on you for refusing the NG.
I suppose the good thing is that they are well resourced and you are likely to get some thorough tests- though I bet the idea of having your beautiful girl undergo all of them is close to unbearable. I bet she is getting some wonderful hugs from you right now.
Such a worry but be careful with Doctor Google as it can lead you down some dodgy paths. I know do many different tests are trying but hopefully they'll show up the problem. What about you and your family are you teeny by nature? 10 months is so very young to judge. Although obviously there were enough signs to drive you to the hospital in the first place. <<Sits down, offers tea and a couple of trashy magazines as distraction from Dr Google>>
Morning ophelia yes, the tests will be horrible, but you will get answers eventually, try and be patient with the docs, while sticking to your guns, they need to check every possibility if theyre baffled. I know the feeling, had similar when my DD was in NICU, they kept asking if I took drugs??!!
Give our virtual hands a hard squeeze when ever you feel the need, will be thinking of you and your little fighter today.
"Is weird as the only thing she cannot do at 10 months is pull herself up."
She sounds quite advanced. DD wasn't doing all those things at 10 months - she was only just sitting up on her own. She started pulling herself up at 12 months and walking unaided at 16 months. She developed normally, just not as early as some other babies.
Good luck with the tests. Will they be looking for coeliac disease and allergies?
Also in Asia and holding your hand. Thai hospitals are among the best in the world so they will do absolutely every test under the sun. What hospitals in Asia tend not to be great at is bedside manner so although you will get first rate medical care, the fluffy, hand holding side may be less obvious than in the uk.