DD is now 18 weeks. She has reflux and cmpi. She spent five days in hospital when she was 10 weeks for projectile vomiting and refusal to feed. She was tube fed and then given IV fluids. This led to her diagnosis.
She is on neocate milk. She has lanzoprazole, ranitidine, domperidone. After an appointment with consultant yesterday she is now on erythromycin and a high calorie med. She has had problems gaining weight and had now lost weight. We have started weaning under guidance of a dietician.
We have been told that the next step is tube, most likely through her abdomen. She just has days where she refuses to feed and it becomes one long battle. We have periods where she feeds ok, but she is so sick as well. I am really worried and drained. Has anyone been here?
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Children's health
Severe reflux and CMPI, weight loss and now talking feeding tubes. Can someone help?
16 replies
raininginbaltimore · 07/12/2012 11:11
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