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Mumsnetters aren't necessarily qualified to help if your child is unwell. If you have any serious medical concerns, we would urge you to consult your GP.

Anyone's DC on montelukast?

(37 Posts)
HotheadPaisan Sun 15-Jul-12 15:50:04

Message withdrawn at poster's request.

brainonastick Sat 05-Jan-13 13:25:43

Ok, we started it first thing this morning, so fingers crossed!

Lozario Fri 04-Jan-13 21:03:18

I'm not sure why it says evening. We give it at around 10am - 2hrs after breakfast and a couple of hours before lunch. Reading about the nightmares issues on here maybe it's better that way!

I got the impression from GP it's a relatively new drug?

brainonastick Fri 04-Jan-13 19:59:19

I just came on here to ask about montelukast! Dd2 has just been prescribed it for recurring viral wheeze, which I was a little confused about as we haven't even tried the beclamethasone yet (which has worked well for dd1). Very helpful thread, thank you.

I was also wondering about the timing of the meds, as dd2 is normally asleep by about 1hour after tea max. I would be interested to know when everyone else fis it in? The only time that is -1hr and +2 hrs from food is when she wakes up in the morning, but the packet also says take it in the evening confused.

Skiffen Thu 03-Jan-13 19:05:26

Phew, it's the granules! Thank you for clarifying that.

cedmonds Thu 03-Jan-13 19:00:55

Does she have the tablet or the granules. The granules can be given at any time.

Skiffen Thu 03-Jan-13 18:58:02

The only way we get it into dd2 is as part of her evening meal, drs know this and never been told it's a problem blush

cedmonds Thu 03-Jan-13 18:18:29

tiffinbaker Great ormond street also said that it was better if even on an empty tummy but on occasions it is ok to be given on a full tummy..

tiffinbaker Thu 03-Jan-13 16:34:14

thanks - I will talk to our GP and see if it will be OK for us to do the timing differently.

cedmonds Thu 03-Jan-13 12:03:09

Ds has been on it since a baby. When he changed from the granules to the tablets he got really bad nightmares. We were told by great Ormond street that it can be given in the morning. Which has helped ds.
It has made a big difference to him. We have a period of not being on it and his asthma and allergies were awfull

weblette Thu 03-Jan-13 10:33:10

Ds's consultant told us to do it like that.

tiffinbaker Thu 03-Jan-13 09:50:43

weblette I notice you said "an hour after food" and just wondered - our packet says one hour before or two hours after food, which we find a right pain sometimes because on nursery days DS doesn't usually finish supper till after six so we either have to hurry him up and make him eat quickly (or take away the food before he is finished) or keep him up later than normal - encouraging meltdown - or give him the pill before 2 hours is up - making us feel guilty for not obeying instructions. If it can actually be given only 1 hour after food then that would save us many nightmares! I wonder if yours is a different brand/dosage to ours to make the instructions different?

Lozario Thu 03-Jan-13 00:09:04

We're pleased with it; DS (3.6) suffers with recurring viral wheezing and so we're told to give it to him whenever he starts a wheezy cough (usually towards the end of a cold) as previously it always became traumatic croup. I'm glad as he was taking prednisolone for the croup all the time which was worrying me. No side effects to report so far - he has had Montelukast a couple of times over the winter.

TheSecondComing Wed 02-Jan-13 11:37:16

Message withdrawn at poster's request.

ggirl Wed 02-Jan-13 11:34:09

ds has been on it for yrs , we had a break from it cos we thought he didn't need it but he had 3 bad allergic reactions when not taking it so we're back on it had changed his life for the better

HotheadPaisan Wed 02-Jan-13 11:30:23

Message withdrawn at poster's request.

weblette Wed 02-Jan-13 10:06:21

Montelukast works in a completely different way to traditional inhaled steroids so it's definately worth trying and is often used in tandem with them. It's usually prescribed on a daily basis - taken an hour after food, just before bedtime.

tiffinbaker Tue 01-Jan-13 22:12:28

We had 3 hospitalisations in the space of 7 weeks for wheezing, at while point we were given montelukast for DS and told to just give it to him for 7 days following the onset of a cold, and he hasn't had an attack at all since. Given the season he's been on it for more than half the time. He does tell us he had sad dreams when he wakes up in the morning after a pill, but it's never been bad enough to cause night-terrors or waking so we're assuming this is not too bad compared to regular hospitalisations, and the effect doesn't continue on days when he doesn't have a pill so it is short-acting. OP I know the side effects sound scarey and I was scared of them too - if DS had had severe nightmares or other side effects I might not have continued, but consider giving it a short try, you may be lucky and find that the side effects are mild in your DS too.

harryhausen Tue 01-Jan-13 19:38:08

To to add I find the combination of the steroid inhalers and Monteluskast a good one. We still have the odd attack and are still under the consultant. The last time she saw us, she gave us dissolvable steroids to have in the drawer as a 'belt and braces' to us feeling a big attack is coming. She said it may help to stave it off.

The experience we have with it, the more we know what the situation is. I've nothing but fantastic care from the nhs on this one.

harryhausen Tue 01-Jan-13 19:33:02

My ds has been on Monteluskast chewable tablets since he was 3.5yrs. He's now 5. We were regularly going to a&e around once a month, and hospitalised twice for longer stays with Asthma. As soon as we got to see a asthma consultant specialist, she put him onto the tabs and we saw a vast improvement in him almost overnight.

Our hospital visits became much less frequent. A while later she hugely increased his preventative steroid inhalers and we saw more improvement. However, I feel it's the Monteluskast tabs that make that extra difference. I only have positive things to say about it.

Lonecatwithkitten Tue 01-Jan-13 19:32:52

DN has been on for 6 years prior to that she had had 8 admissions to hospital with life threatening low oxygen levels that could not be controlled with nebulisation. She had not been hospitalised since then though has had to stop beconase recently as it is affecting her voice and she is a singer.

HotheadPaisan Tue 01-Jan-13 19:27:43

Message withdrawn at poster's request.

weblette Tue 01-Jan-13 19:17:43

Ds2 is on it but as his asthma's been deteriorating I'm really wondering what the benefit is. No side effects here, just not convinced it's an appropriate/effective med for him.

knackeredmother Tue 01-Jan-13 18:26:01

Dramatically reduced the amount of admissions for ds, no side effects at all. There is currently a trial (WAIT) trial looking at whether it is effective when given just with a cold rather than continuously.
I definitely reccomend it from personal experience.

hazeyjane Tue 01-Jan-13 18:21:15

Dd1 was put on it, when she was 3 1/2 but she had bad side effects, in the form of dreadful nightmares. She has always been a bad sleeper, but the nightmares and night terrors she had were awful.

Skiffen Tue 01-Jan-13 18:18:19

Dd2 is on it, not for asthma but other respiratory problems. We found it made a big difference to her day to day symptoms, no nasty side effects.

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