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Anyone's DC on montelukast?(37 Posts)
Ds is 2.8 and has been on it since February, it made a massive difference to him for about 3 months then he got pneumonia and since then his asthma has been less controlled but still better than it was when on just the clenil
My son had this but became quite naughty- different from his normal behaviour. It also seemed to make no difference to his asthma he still had an attack so i stopped it. Am seeing specialist this week so i imagine i'll be told off!
Both my 2 younger sons have taken montelukast. For both of them it was brilliant. We did have issues with DS3 on it as it gave him diarhoea, but as it stopped him being admitted to hospital every 4 weeks with breathing difficulties we could manage that! They have both taken it in combination with a brown inhaler, but the brown inhaler wasn't enough of a preventer on its own.
DS3 has since grown out of his viral wheeze, but DS2 is still taking it (along with a concoction of other things). I can't rate it high enough!!
My kids are adults now but they were early test patients for montelukast in children. For dd it works well, she first took it as a young child and is on it now at the age of 22. She did develop headaches which were flagged up as being a side effect but they did resolve eventually.
For DS it was useless, he might as well have been taking placebos.
The difference between my two was although they were both really chronic asthmatics DD has allergies and DS didn't. DD's asthma is also quite difficult to manage, she doesn't respond to ventolin so takes Fostair as her preventer and reliever.
DD is on it and the dose has recently been increased since her birthday - age related thing. as others have said, the reason she is on it and ds2 is not, with asthma roughly equal, is that dd has allergies, some diagnosed and some that despite testing, we can't pin down. it really works for her and keeps the symptoms under control. Consultant wanted to test her out without it so we tried a three month period off it last year...her symptoms were generally not controllable with inhalers, although not hideously severe to start with iyswim. Her asthma wasn't under control though and a chest infection that she couldnt shake off for a month made the consultant put her back on montelukast - symptoms drastically improved within days. it looks like she will continue to take it for at least another year.
make sure you get regular reviews. it is very clear when it works, the difference is enormous.
Alternatively, I'm wondering if an inhaler other than beclametasone would help. I developed adult-onset asthma and the purple inhaler worked best for me.
Seretide isn't licenced in under 4s so they are reluctant to give that so young unless everything else has been tried.
What dose of the brown inhaler does she have? Ds was on 400mg a day before he was moved to the seretide as it still wasn't working (he was just under 3 when he started it)
My son has been admitted to hospital twice for nebulising, then he was put on Montelukast and for the last 2 years he's been much better. I've noticed a huge difference in his breathing/asthma.
Dd2 is on it, not for asthma but other respiratory problems. We found it made a big difference to her day to day symptoms, no nasty side effects.
Dd1 was put on it, when she was 3 1/2 but she had bad side effects, in the form of dreadful nightmares. She has always been a bad sleeper, but the nightmares and night terrors she had were awful.
Dramatically reduced the amount of admissions for ds, no side effects at all. There is currently a trial (WAIT) trial looking at whether it is effective when given just with a cold rather than continuously.
I definitely reccomend it from personal experience.
Ds2 is on it but as his asthma's been deteriorating I'm really wondering what the benefit is. No side effects here, just not convinced it's an appropriate/effective med for him.
DN has been on for 6 years prior to that she had had 8 admissions to hospital with life threatening low oxygen levels that could not be controlled with nebulisation. She had not been hospitalised since then though has had to stop beconase recently as it is affecting her voice and she is a singer.
My ds has been on Monteluskast chewable tablets since he was 3.5yrs. He's now 5. We were regularly going to a&e around once a month, and hospitalised twice for longer stays with Asthma. As soon as we got to see a asthma consultant specialist, she put him onto the tabs and we saw a vast improvement in him almost overnight.
Our hospital visits became much less frequent. A while later she hugely increased his preventative steroid inhalers and we saw more improvement. However, I feel it's the Monteluskast tabs that make that extra difference. I only have positive things to say about it.
To to add I find the combination of the steroid inhalers and Monteluskast a good one. We still have the odd attack and are still under the consultant. The last time she saw us, she gave us dissolvable steroids to have in the drawer as a 'belt and braces' to us feeling a big attack is coming. She said it may help to stave it off.
The experience we have with it, the more we know what the situation is. I've nothing but fantastic care from the nhs on this one.
We had 3 hospitalisations in the space of 7 weeks for wheezing, at while point we were given montelukast for DS and told to just give it to him for 7 days following the onset of a cold, and he hasn't had an attack at all since. Given the season he's been on it for more than half the time. He does tell us he had sad dreams when he wakes up in the morning after a pill, but it's never been bad enough to cause night-terrors or waking so we're assuming this is not too bad compared to regular hospitalisations, and the effect doesn't continue on days when he doesn't have a pill so it is short-acting. OP I know the side effects sound scarey and I was scared of them too - if DS had had severe nightmares or other side effects I might not have continued, but consider giving it a short try, you may be lucky and find that the side effects are mild in your DS too.
Montelukast works in a completely different way to traditional inhaled steroids so it's definately worth trying and is often used in tandem with them. It's usually prescribed on a daily basis - taken an hour after food, just before bedtime.
ds has been on it for yrs , we had a break from it cos we thought he didn't need it but he had 3 bad allergic reactions when not taking it so we're back on it now...it had changed his life for the better
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