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Recurring constipation/faecal loading - please help!

(120 Posts)
Tweedledumb Fri 30-Mar-12 18:57:37

Message withdrawn at poster's request.

ellenbrody Fri 20-Apr-12 16:30:49

Ha! Yes, that was the word and I remember thinking exactly the same thing! Tee hee

NormanboysMum Mon 16-Jul-12 12:23:14

Hi Tweedledumb..so glad to hear that you are at last getting somewhere...how are things going ?? Really feel for you..my lad is now 10 and has faecel impaction all his life, with the soiling etc. Changed consultant at local hosital 18 months ago who refered him to the Gastro team at Great Ormond Street hospital and he is now under a consultant who specialises in motility disorders....It has been a revelation ! DS spent 3 days as inpatient last month and has every test they can possibly do on his lower intestinal tract, colonic manometry, endoscopy, colonoscopy, ano-rectal manometry, full thickness biopsy from his rectum. We go back to London next week to get all the results, but one they have disclosed so far is that he does not have any rectal "relaxation" reflex hence he cannot open his bowel.
I would seriously recommend any parent who is "getting nowhere" with local hospitals to ask for/get a referal to nearest childrens hospital who specialise in these problems. When DS was there they had 3 Dr's who where doing research, so he was able to provide a iopsy towards that and help other children. We have had years of the stress, the worry, the unnecessary comments, an unhappy child and unhappy parents...I really do hope you are getting on well !

Tweedledumb Fri 27-Jul-12 12:57:48

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Tweedledumb Wed 01-Aug-12 12:19:40

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cestlavielife Wed 01-Aug-12 14:43:37

dont know if already said but my son had severe impaction and constipation/overflow issues - one gastro recomended probiotcs daily and this has really helped -we use biocare acidophilus powder half teaspoon in juice daily.

Tweedledumb Wed 01-Aug-12 19:11:31

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fivegomadindorset Wed 01-Aug-12 19:17:28

Sounds positive, we were referref to the specialist incontinence school nurse who wants to refer us to parenting classes hmm

Interestingly I was talking to a friend who is a GP in Australia and ashe can't understand a) why DD has not had any physical examinations to make sure that everything is in working order and b) why we haven't been referred to a nutritionist to see if she has an intolerance, both of which are very common referrals out there.

Tweedledumb Wed 01-Aug-12 20:43:00

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Eachpeachpearwherestheplum Tue 19-Feb-13 22:39:58

Can I bump this thread? Really hoping all you lovely mums have good news to now share, months on?
Really struggling with DS and years of issues. Daily movicol, 1 a day works for a few weeks, then back to square one sad Really had enough. Under Prof Candy and awaiting Nursing team to contact us sad

Plopsicle Thu 21-Feb-13 16:39:45

Can i ask how you would know if your child was impacted?

Ds is 9 and only poos once a week, the poos are really big though. No issues with overflow/soiling.

Marzepan76 Thu 23-Jul-15 00:10:28

Hi there.. I was just wondering how this turned out? Also did anyone try daily enemas instead of/as well as laxatives? Thanks

PippaFawcett Thu 29-Oct-15 15:59:43

Hi to all the original posters, I wondered if anyone has got any updates they can share? We are currently going through something similar with DD and it is a nightmare.

Tweedledumb Wed 18-Nov-15 14:25:52

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PippaFawcett Wed 18-Nov-15 14:33:59

That is good news to hear that you have had a proper diagnosis and found a reason for her bowel issues.

We are still waiting for a referral for DD and she is on Movicol which seems to keep her going but doesn't stop the soiling.

Thank you for posting the update, I have searched the site for similar stories as I get more info here than I do from the GP!

Tweedledumb0 Wed 18-Nov-15 15:09:16

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Adarajames Wed 18-Nov-15 16:38:52

Someone back earlier in thread mentioned complementary treatments; I've found that reflexology works very very well on morphine induced chronic constipation, wondered if worth trying for chronic constipation due to other causes?

Tweedledumb0 Wed 18-Nov-15 17:08:21

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Tweedledumb0 Wed 18-Nov-15 17:09:18

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Marzepan76 Thu 19-Nov-15 03:35:29

Thanks so much for posting the update - there are so few good news stories where things resolve after years. Hopefully it's because when things resolve people feel less like hanging out on the internet talking about it.. but I'm not so sure.
I haven't tried dietary changes and will do so. That is fantastic news for you.
Thanks again

Tweedledumb0 Thu 19-Nov-15 14:08:07

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