After ringing to say could we think about medicating DD and it is our decision, the neurology registrar called back today to check if I had decided yet. I said that I still feel unprepared for this decision as didn't know enough about it and asked them what the neurologist feels. He said he thinks medication is apprpriate now that dds seizures appear to be more frequent.
I really want to contact epilepsy action for a chat about this as I feel unsure due to all the side effects, esp as dd has a lot of speech and language and development to catch up on and I understand that the drugs could make her sleepy and interfere with this. Also she is steroid dependant and is at risk of becoming very ill indeed if she has sickness etc from them initially which seems to be fairly common.
otoh if they feel its safer to do this then she needs to go on it. Or maybe they have to say that is what they think to cover themselves? Any advice appreciated, I will try and ring epilepsy action tomorrow but it is hard as I will be at work then at a hospital appointment with
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Children's health
Carbamazepime for epilepsy, please can anyone advise/give experiences with this
5 replies
used2bthin · 21/09/2011 21:41
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