Hi i have an 8 month old girl who has been diagnosed with 22q.11 deletion. all the stuff i have read about it is doom and gloom and its really freaking me out. She had feeding problems 4oz took 2 hours and then she had surgery as she had a right aortic arch, with a vascular ring which was compressing on her osopheagus and wind pipe, this was ligated at 4 months and she has been feeding well since - loves her solids. She is really behind physically, doesn't roll over and is still struggling to sit but i'm not worried about that.
What i really want to know is does anyone have a child with Di George that is coping normally? i would love to hear from anyone who had experience with this.
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Children's health
22q.11 deletion (Di George Syndrome)
6 replies
popsybelle · 05/04/2011 20:56
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