DD1 has her first appointment with GOSH on Thursday, and I am completely clueless!
Last year (July), she was hospitalised for Hemolytic- Uremic Syndrome with renal failure. She spent 5 weeks in hospital on dialysis, but bounced back, and on our appointment in November '09 had 60% function in her now 'bad' kidney and 70% in her 'good' one.
Our lovely doctor referred her at the beginning of November after what was supposed to be her 'final' follow up check. Her GFR test was in Stage 3/5, which meant a moderate reduction in kidney function. :( Her ultrasound also showed her kidneys as significantly smaller than they should be.
Instead of her kidney function improving, as we had assumed was happening, it is now 35% in her bad kidney and 45% in her good one. We are hoping to find out if it is her 'bad' kidney that is damaging the 'good' one, or they are both getting more damaged progessivley.
Our admissions letter says that she is going to be admitted in the morning for another GFR test, and then later that afternoon we are going to outpatients to see her consultant, so I guess we will be spending the day there. Our current doctor also said they often like to 'start from scratch', so I imagine they also might give her another ultra sound ect...
If anyone has actually made it to the bottom of this, thank you :), and any experiences of both the wards and/or outpatients would be much appreciated!!
Oh and other than things to keep her occupied, is there anything your recommend we take?
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Children's health
Does anyone have any experience with GOSH?
bambiandthumper · 28/12/2010 12:27
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