Hello all
I have a dear friend who had twins in June. One is well and at home with the family, the other is sadly still in hospital and struggling with all sorts of health problems (seizures, blood sugar fluctuations, deaf, blind and digestion difficulties to name a few). The doctors call her a puzzle and haven't been able to work out what is wrong, despite the fact that she is in one of the best pediatric hospitals in Germany where they live.
As you can imagine my friend (the Mum) is finding life very hard. She has not yet bonded with her ill twin, and is scared to because she might lose her. She also has the other well twin at home and a 3 year old who she desperately wants to protect from this stress and sadness.
She is finding the roller coaster ride from one day to the next with the baby improving then getting worse, then the doctors saying she won't live to the next saying she will live but will have many developmental difficulties. Feelings of guilt, fear, grief mixed with hope and elation on the good days is really very hard for her to cope with. She is confused and doesn't know where to turn for help in accessing some feelings which she is scared to admit to.
Has anyone got any recommendations for a book on this topic please? ie. Coping with having a seriously child. A self-help guidance book, or even a novel which covers some of the issues might help her to explore some of her feelings and also enable her to feel that she is not alone with what she is going through. She is a book person and I know that this method could be a support to her if there is anything out there.
Thank you to anyone who can help.
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Children's health
Book suggestion for parents with seriously ill infant?
4 replies
WalnutStreet · 01/12/2010 19:54
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