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Reviews of UCH - diabetics or anyone

(5 Posts)
tigger15 Tue 22-Sep-09 14:13:55

So I decided after my not wonderful labour and post-natal experiences with ds not to return to st mary's. I'm type 1 diabetic had a c-sec want a vbac and after research decided to go for uch as they let you go for one extra week before they induce/cut in my case.

So I had the pre-conception appointment got pg about 6 months later and called up to book in and mentioned I was type 1 diabetic. I got an appointment for when I would be 9 weeks at 8am which I thought brillant. I get there and am sitting through this frustrating midwife session in which she is telling me what happens at each stage and I'm saying but this didn't happen last time what about this and that test and she says well I don't know about diabetic pregnancies. She eventually goes to ask her superior and they go into all panic stations that I should have been seen by doctors and must come back on the next day to see the doctors. Obviously I was not best pleased as it I didn't want work finding out until it was a bit further a long.

I come back the next day see doctors who want to see me 3 times in that week because they haven't managed to see me till that point. I negotiate this down to one phone call and an appointment the following week then I started bleeding.

Before returning the next week I went to the EPC had a scan and had it confirmed that I had had a miscarriage. They informed me that I needed to come back to check that all parts had been removed and they would tell all obstretic parts that I no longer needed my appointments.

A week later I receive an invitation to attend a GTT. (Personally I found this amusing as this is the one condition I can't get!). So I called up to reinforce the message that I would not be needing pregnancy appointments and asked them to ensure they are cancelled as I didn't want to waste NHS time and money. They apologised and said it would be done.

I turn up for the appointment to confirm that all tissue has gone to find they've cancelled that too. Cue burst into tears and get seen that way. It hadn't gone and they decided to do an ERPC. After talking me through the local anasthetic procedure I point out that if they want me to fast I'll have to adjust my insulin and they go into full scale panic and insist I must have it under GA 3 days later.

They then call me up the next day and say it's more convenient to them to have it the next day.

I go in. They spend 90 mins trying to find who I am because they're looking for me under my first name and then my misspelt surname. Eventually get it right then more confusion as they argue whether they need to put in a sliding scale or bump me up the list as apparently should have been done in the first place. The consultant then informs me that despite having been told I could go home same day they want to keep me in that night.

They bump me up the list do the ERPC and I escape a couple of hours later having controlled my insulin throughout GA procedure so still don't see why they refused for the local.

So obviously that was all unpleasant and not very impressive from their side but I was prepared to give them another shot until this week 3 months later I'm called by a midwife to ask why I haven't attended appointments since June. I explained and she apologised but I'm becoming quite concerned that their basic system is so poor. Once you get to consultant level it seems to work but getting there takes time and the lower levels have been so inept. Has anyone got any reassuring stories about them or am I right to be worried and when I hopefully manage to get pregnant again should I just go back to st mary's where at least the antenatal care was very good?

DuchessOfAvon Tue 22-Sep-09 14:25:41

Lordy Tigger - what a nightmare. I am so sorry that you had to go through all of that.

I was under care at UCH for my first. They weren't stunningly organised but they were NEVER that bad. The Royal Free WAS and I had similar experiences with them after a m/c which is why I swapped to UCH.

The antenatal clinics always ran late - and I do remember that there was a seperate diabetic clinic which I once got sent to in error!

However, it wasn't a straightforward pregnancy or labour and the medical care I had was great. And their neo-natal unit has a great reputation.

The post-natal care was a bit hit and miss - it depended on which midwife was around. Becasue I'd been in and out for over three months I knew most of them quite well and a few lovely ones looked out for me after DD1 was born.

All in all, I found that my experiences didn't differ that much from my NCT class who used Royal Free and the Whittington as well as UCH.

To be honest, i think its part and parcel of life in London - the hospitals are too big and very under-staffed. Having DD2 in Leeds was much nicer.

Whatever you decide, best wishes for a successful pregnancy next time round.

koeda Tue 22-Sep-09 20:43:38

To give you a positive story....

I'm with UCH (16 weeks). At my booking appointment I was given the choice to have my initial blood tests taken there and then, OR have them taken along with the blood test that I would be having a few weeks later for the Downs test at the 3 month scan. I chose to do it all later at the scan.

I went for the scan and completely forgot to give my extra blood sample bags to the nurse, so she only took 1 sample for the Downs test. I realised that night and planned to ring the hospital the next day to find out what to do.

The next morning, before I had a chance to ring the hospital, my appointed midwife called me and asked why they hadn't taken extra blood for her checks! Talk about quick off the mark.

So, nothing particularly remarkable or life saving but, given the patchy service I have come to unfortunately expect from the NHS, it was quite impressive.

Things could of course change, but so far so good...

pecanpie Tue 22-Sep-09 21:11:02

I've also had a really bad experiences with UCH with a miscarriage. They botched an ERPC and I had to have it done a second time (thankfully not at UCH), I wasn't impressed that I was on a mixed day ward before and after the procedure (completely inappropriate)and I was promised that the 'tissue' would be tested to see if there was a reason for the miscarriage. after being given a variety of excuses weeks after the ERPC (including 'we don't do it on the NHS') I was finally told that they were just inept on this occasion and had disposed of it by accident.

Having said that, miscarriage and antenatal care are completely separate.

BUT I didn't feel comfortable going back to the hospital when I finally got pregnant again. I went back to Royal Free where I had my dd in 2007 and they have been brilliant, especially as I've been stressing out quite a bit after 2 miscarriages. It seems as though antenatal care has been cut quite a bit since my first pregnancy, but given the various issues that I have in my current pregnancy, I'm really happy with Royal Free as they are seeing me more frequently and have arranged a care plan I'm happy with.

It's really up to what you feel comfortable with though - post natal care is pretty rubbish everywhere from what I have heard from friends who have been at different hospitals.

tigger15 Wed 23-Sep-09 10:01:02

Pecanpie - sorry to hear about your experiences.

Apart from the miscommunication they did do the erpc quite well and had got me a private room on a gyne ward so no complaints about the set up.

I guess I'll just toss a coin when hopefully I have to make the decision again hmm

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