Hi, so sorry about the long post - i am very nervous and want advise on dealing with fibroid in delivery as well as the nhs system so i am outlinining this in great detail in hope someone can advise me on how to deal with my dr's and hopefully get info out of them.
I am 33 weeks pregnant with several fibroids, an orange, 2 lemons, and a few eggs as the sonographers have joked. one of which is low lying over 8cm and baby's head is just above it, he is head down at the moment. I am very confused by the antenatal staff i have been seeing and would really like advise from women who have delivered with similar fibroid positioning.
this is my first pregnancy and i have had terrible abdominal pain including suspected degeneration, though i didnt go to hospital when maybe i should have done as i may have been taken more seriously later on, if i wasnt bleeding i thought i wouldnt trouble them. It started at 9 weeks with pain and heavy bleeding, which during an emergency scan was diagnosed as fibroids, though 6cm at the time was the low one. I had a referral to an obs consultant, mr ash at st thomas's, at 11 weeks who said if i make it that far he will see me at 37 weeks, though i am at risk of pre term labour and pph.
my 13 weeks scan showed the fibroid had not moved and was still 6cm, with a few others cropping up in the scan. at 16 weeks i went into a really painful spell, which got me really worried for baby, and by the time i could move again a week later i decided to go for a private re-assurance scan for £100, it was only meant to be a check up on baby as i didnt want to bother nhs as i was better by then. the private consultant however popped his head around the door and said my case was very interesting, i should get more monitoring for sure, baby was fine and a c section was safest delivery in light of the fibroid position being so low and close to the birth canal. he told me to come back at 30 weeks but i simply can't afford it.
at 20 weeks i had my anomily scan, and the sonograper asked me to let my dr know that i should have another scan as the fibroid is still very close to birth canal, i said i wasnt due to see one until 37 weeks so she booked me in for a 32 week scan herself but said i should get seen by a dr if i can.
at this point i went to my gp with my concerns, my community midwife wouldnt return my calls and i had only 1 meeting with her by this stage. I asked to be referred to a fibroids specailist by name, mr mascarenas also st thomas, who operated on my friends fibroids. the appointment was booked in by one of the lovely midwives at st thomas who seemed very concerned at 24 weeks. on the day, he wouldnt actually see me, though i saw him read my notes i believe (my friend described him to me later), and i was given what seemed like a standrad message by one of his junior dr's that there is nothing they can do and i just need to take paracetemol and codine if i cant sleep, go to hospital with any more bleeding or regular contractions and vaginal delivery would be most likely. I was concerned about not being able to see someone before 37 weeks as i was at risk of preterm labour and he said i should ask my midwife to book in at 32 weeks with mr ash.
my 32 week scan showed the fibroid has grown to 8cm, and baby's head was above it. the sonographer was also a midwife and she said in her opinion it looked like a c-section. i assumed my meeting later in the week with mr ash would be to discuss the details of delivery in light of all the scan results showing it was low and slightly bigger. i am by now very worried about delivery complications, have a read a fair bit on line, probably not so wise.
that appointment was today, and he wasnt available, i was seen by a junior dr who told me that baby's head would likely descend past the fibroid in which case a c section would not be appropriate wheni described my situation and asked if fibroid or vaginal delivery were best in my case. when i asked about if the fibroid may flare up during vaginal delivery or if it could cause a more complicated labour, she seemed to discuss something not relevant, about fibroids inside the womb, which i dont have, mine are intramural. i asked her if she had read my notes, which she said she had, but then opneed the book and started going through the notes then. i said i wasnt happy with the advise she was giving me as it didnt pertain to my particular case, but a generic message about fibroids and she offered a second opinion. a registrar then came in, with the jnr dr stood cross armed behind her, told me it would most likely be fine for vaginal brith and that 100% of women with fibroids deliver vaginally in her experience without any medical intervention - which is completely far fetched - or i am being unreasonable? i got the very distinct impression they were fobbing me off and said they couldnt make any further assesments on the birth until 38 or 39 weeks. unfortunately the notes that were written by the jnr dr at the end of the visit were pretty negative, 1st line reading i am very unhappy with my antenatal care and i was insisting on an elective c-section - which really wasnt the case, i just wanted to discuss how my fibriod will affect birth either way.
on my way out i bumped into the sonograoher midwife who did my 32 week scan and asked her why they are reluctnat to discuss delivery with me when she was able to say it looked like a c section was more likely, she said she didnt know but sometimes they leave it until the last minute. she arranged an appointment for next week with mr ash for me saying i wasnt being a bother but i should really be seeing him to discuss this if i still have questions.
does anyone have experiences of childbrith with low lying friboids they would like to share? and any advise on how to approach my discussion with mr ash next week, he is rather an abrupt man. my preference is for a c-setion if the labour is likely to be complication or dysfuntional, which i have read in british medical journal that there is a medium risk that it will be. I am also worried my notes have pain in the ass written on them thanks to that jnr dr and i feel i am not being taken seriously bythe dr's in general, the midwives and sonographers have been pushing through my care more that my community midwife and the dr's seems to read my notes and switch off.
any advise much much appreciated....
thanks for reading
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Childbirth
low lying fibroid 8x6cm, 33 wks worried about childbirth - any advice?
10 replies
sarns · 31/07/2009 19:51
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